MY DAUGHTER WAS BORN WITH A RARE BRAIN DEFECT CALLED SEMI LOBAR HOLOPROSENMICROCAPHALY IT AFFECTS THE NERVOUS SYSTEM AND MOTOR SKILLS MY DAUGHTER IS COMPLETE TOTAL CARE SHE DONT EAT BY MOUTH SHE IS TUBE FED SHE DOESN'T WALK MY DAUGHTER HAS MANY OTHER HEALTH PROBLEMS EPILEPSY AMONG OTHER HEALTH ISSUES EVERYTIME I WOULD TAKE MY DAUGHTER FOR A CHECK UP AT THE PCP OR WHEN SHE WAS SICK OUR DR KEPT SAYING TO ME HE THINKS IT WOULD BE IN MY BEST INTEREST FOR ME TO PLACE MY DAUGHTER INTO A FACILITY I TOLD THE DR NO 1TIME SHOULD HAVE SUFFICED HIM BUT IT DIDN'T MY DAUGHTER GOT SICK AND OUR DR DECREASED MY DAUGHTERS FLUID INTAKE MY DAUGHTER HAS A HEALTH ISSUE KEEPING HER SODIUM AT A NORMAL LEVEL AND WITH THE DECREASED FLUID INTAKE MY DAUGHTERS SODIUM WENT TO 191 THE EMERGENCY ROOM SAID THEY NEVER SAW ANYONE COME THROUGH THEIR DOORS THAT HIGH AND STILL BREATHING LET ALONE ON THEIR OWN. MY DAUGHTER IS STRONG AN ANGEL A FIGHTER WHILE IN THE HOSPITAL OUR DR AT THE TIME SUGGESTED TO ME AGAIN I SHOULD HAVE MY DAUGHTER PLACED INTO A FACILITY HIS NAME IS DR JAMES WELCH I TOLD HIM NO AGAIN SO HE CALLED THE ADULT PROTECTIVE SERVICES ON ME SAID I CANT CARE FOR MY DAUGHTER BECAUSE SHE KEEPS GETTING SICK SAID I SPEND TO MUCH TIME WITH MY DAUGHTER FROM THAT POINT ON I HAVE NOW HAD THE ADULT PROTECTIVE SERVICES IN MY LIFE TELLING ME HOW TO LIVE SAID THEY ARE GIVING ME A SECOND CHANCE TREATING ME LIKE IM A CRIMINAL, KYLIES LAW WILL GIVE US PEACE OF MIND KNOWING WD CANT BE FORCED TO PLACE OUR LOVED ONES INTO FACILITIES AS LONG AS THEY ARE PROPERLY BEING CARED FOR AND LOVED KYLIES LAW WILL HELP US GET THE MEDICAL NECESSITIES WE NEED TO CONTINUE CARE FOR OUR LOVED ONES, WHY MAKEBOUR LOVED ONES BE PLACED INTO FACILITIES THEY HAVE RIGHT WE HAVE RIGHTS PLEASE STAND WITH ME SIGN MY PETITION TO PASS KYLIES LAW THROUGHOUT EVERY STATE WE ARE THE VOICE OF OUR LOVED ONES STAND TALL FOR THEM STAND PROUD OF OUR FAMILIES FIGHT WITH ME