Petition updateStandardize, Regulate & Audit Shock Treatments (Electroconvulsive therapy or ECT)A day in the life of a person with ECT's Functional Brain Injury & Neural Fatigue
Sarah HancockSan Diego, CA, United States
Aug 21, 2020

Today I discovered a video I made more than a year ago and completely forgot about. The aim of the video is to help people understand how ECT causes neural fatigue and what my doctor has me do to combat it. 

This video was shot over the course of a day. Pay attention to how my eyes align or don't align depending on how fatigued I am. Pay attention to how my speech changes based on how tired I become. Witness how I walk at the end of the day. (sorry I forgot to film what I'm like at the beginning of the day...and things have deteriorated over the past year, so things are different now than they were.).

In this video, I share some tips on what I do to conserve energy, prevent sensory overload and extend my ability through out the day. 

These are strategies that I developed with my doctor who is researching brain injury and electrical injury in her efforts to help me. We are tapping into a variety of resources in an effort to improve quality of life. 

As you can tell in this video, my eyes no longer align--especially when fatigued. 

Since this video was filmed (more than a year ago) my doctor has referred me to occupational therapy, speech therapy and physical therapy at Scripps Brain Injury Rehabilitation in Encinitas, California. She also referred me to an ophthalmologist who does visual assessments and rehabilitation. You can find an optic rehabilitation specialist through the Neuro-Optometric Rehabilitation Association.

All ECT recipients deserve to have an automatic referral for comprehensive brain injury assessment and referral for rehabilitation as needed.

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