Why are we having to fight the state, for help with our children? 

My name is Tayler Hanks.

My beautiful baby boy Grayson was born November 29th 2015 in Livingston, Montana. Seconds after birth, we noticed something was just a little different about him..
He was born with Bilateral Microtia and Artesia. Meaning; during pregnancy, both of his ears never developed properly, he has no ear canals and Grade 1 & Grade 3 Microtia which is a physical deformity as well as a devolopemental disability. Apperently, according to the State of Montana and SSI, Graysons disabilties are not severe enough to be eligible for benefits.
They stated that deafness is not a debilitating factor, and that their new laws only cover children with severe mental disablilities or blindness..
I am truly lost for words.....
As a mother, I have been fighting the state constantly trying to get help for my son.. Grayson is enrolled with family outreach, he has sign language classes, speech and language pathology therapy, physical therapy, regular appointments with his audiologists, we have met with plastic surgeons and hearing specialists.
I'm sorry, but if my son truly didn't have a disability then why on this earth would he need so many people involved just so he can grow up to have normal functions of any other child... He is almost 1 year old... He doesn't babble, he doesn't use small words, he doesn't respond much to surrounding sounds, and he cant follow simple direction.. We have had coutless assessments, placements, evaluations, screenings, appointments, etc...
This is my child, this boy is my world... I know to the state, he is just another name on a piece of paper, but he is so much more to me and the people that love him.. He is so much more than the state denying him, he is so much more than Montana saying He doesn't need help... I have countless statements from his doctors saying that this will effect his development, mentally and physically. Yet, Social Security Administration shows no compassion....
The SSI benefits are not so I can go buy a new phone, or go out to eat...
This is money for my baby!! So he can finally get new accessories for his Bone Conduction hearing aide, so I can hire another private sign language tutor, so we can start saving money for all of the deductables on his surgeries and travel expenses. 
This isn't just money.... This is oppertunity to give my son things that we would normally have to struggle for...
On the denial papers, SSI had told me to contact them if my son's condition got worse.. How? How could his hearing get worse?! It's not as if he is a little hard of hearing in one ear, and it could get worse.. No, He is deaf, in both ears already!

The last thing that families should have to worry about, is getting the state to have their back.. Instead, that is all we are worried about! Wondering how many months we will have to wait to hear back, how many more doctors we will have to see, how many more statements we have to get to prove it is debilitating ...
We shouldn't have to fight so hard, to have a helping hand from our state, the people that are SUPPOSED to help us... This is america, and these are our children... Since when did this country stop caring about our children's well being, and only focus on the company profits. Please consider supporting my cause; wether you suffer from the same disabilities, you know the struggles of fighting with state officials, or have a baby going through the same thing..