AVOIDABLE DEATHS.... DEHYDRATION DNARs END OF LIFE CARE ABUSES...A PUBLIC INQUIRY NEEDED

AVOIDABLE DEATHS.... DEHYDRATION DNARs END OF LIFE CARE ABUSES...A PUBLIC INQUIRY NEEDED

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julie james started this petition to The Health Secretary Rt Hon Sajid Javid (Health Secretary House of Commons London SW1A 0AA) and
  • Dear Mr Javid I have started this petition with regards to the "Right to Life" for an Inquiry into Aintree Hospital to include my father's medical records to be investigated when he was a patient in there for 8 months in 2012,  after being admitted with constipation, he ended up critically ill and "severely dehydrated"....then put on The End of Life Care Plan....which is being "misused" on the wrong patients in our hospitals targeting vulnerable people including the elderly, and  people who lack Mental Capacity.
  • Formerly known as "The Liverpool Care Pathway" developed for terminally Ill patients in Hospices, End of Life Care has perpetuated many of its worst practices on hospital wards allowing patients to suffer days of dehydration under heavy sedation, leaving them unable to ask for food or drink leading to horrible undignified deaths.

Many patients are wrongly put onto End of Life Care instead of minor issues being treated especially if they are deemed to be "too old", all done clearly to save money due to the cost the elderly are putting onto the system ignoring their "Right to Life". This elderly generation have worked all their working lives paying more Taxes & National Insurance Contributions towards the NHS longer than any other generation!!!

There has never been a better time for an Independent Inquiry into DNARs and End of Life Care abuses....which the COVID Pandemic has brought to Light....

The re introduction of The Liverpool Care Pathway aka End of Life Care... along with blanket DNARs are being used on our hospital wards on patients who are getting told treatments are futile and they are dying when this is not always the case!....Life Saving Treatments are getting withdrawn Opioids like Midazolam and Morphine are being overused and patients are dying.....An Independent Inquiry is desperately needed to help prevent others from being wrongly put on End of Life Care....

This leads me onto my father the late David James, who was a fit and healthy 68 year old talented musician from Liverpool who played on one of Liverpool's clubs just 3 days before driving himself into our local hospital Aintree NHS Trust with stomach pains. After examination by a bowel consultant he was diagnosed with constipation the hospital admitted him into hospital until bowel function resumed.

What should have been a 2 night stay in hospital turned out to be 8 months on CCU!!!. 

We are the family who was at the centre of "The Right to Life" Case in 2012 in The Royal Courts of Justice as the hospital wanted to withdraw treatments 3 weeks after dad was admitted because in their words "he was dying". There was never a diagnosis into what made him critically ill all we know is dad had caught Hospital Acquired Pneumonia within 48 hours of him being admitted into Aintree Hospital then Sepsis resulting from it, which kept him in hospital where he ended up severely dehydrated, kidney failure, & critically ill after just 3 weeks!

The hospital wanted to withdraw treatments 3 days after dad's admission onto CCU without an explanation why or what happened to him.

We felt intimidated as the Hospital tried to get us to agree with them to stop treatments telling us treatments were "futile". We couldn't agree with them so they took us to a Court of Protection in dad's "Best Interests" where doctors admitted he was on "End of Life Care". But we won the case as Judgement was passed that "treatments were not futile and dad still had a "Quality of Life Worth Living".

The hospital unfortunately later appealed in The Appeals Court and got the decision overturned when dad caught another hospital acquired infection....he sadly passed away on December 31st 2012.

One of our main questions and concerns is Why were doctors so intent on withdrawing all treatments after just 3 weeks of admitting dad, telling us he was dying when he wasn't (he actually lived a further 7 months) and putting him onto End of Life Care after he caught a hospital aquired infection/pneumonia which turned into Sepsis causing Acute Kidney Injury.

In 2013 the case went into The Supreme Court as The Appeals Court had got the Law wrong in its reasoning. The Supreme Court ruled The Court of Protection had got the Law correct and that treatments were not "futile" so the "Precedence" Aintree Hospital had tried to set giving permission for all CCU in hospitals the right to withdraw life saving treatments if they thought were "futile" was stopped in The Supreme Court hearing.

We were praised as a family by Lady Hale saying "The Family have won the Argument of Principle " and judgement was passed that we were correct to have challenged the doctors to carry on treatments as they were not "futile".

As a result part of The Mental Capacity Act 2005 was then changed for people who lacked Capacity  and written in the BMJ that "doctors must take into account families wishes in life and death decisions for their loved ones. " This judgement has been passed in the Highest Court in the land but many over 60s are still being admitted into our hospitals and ending up heavily sedated and severely dehydrated on hospital wards...no matter what they are admitted into hospital with.

I am requesting The Health Secretary to consider dad's casenotes/medical records to form part of an Inquiry into how he ended up Critically Ill and severely Dehydrated with organ failure with doctors pressurising us to agree with them to withdraw treatments as they were saying were futile ..

We want Legislation to be passed that families wishes must be considered in doctors decisions in administering/withdrawing medical treatments...especially when a patient lacks Capacity...(as in the Ruling passed in The Supreme Court Case in 2013)  a "National Right to Life Legislation" to be known as "Davey's Law" to help Save lives and put a stop to misusing End of Life Care and people dying in hospitals of Avoidable Deaths.

It is now coming up to 10 years since dad died and we still don't know why or what happened to him in the care of the hospital. 

There has been no Apology for what happened or an Apology for the way we were treated as a family by the hospital. We need clarity and accountability into the factors that led up to my father's death. 

Our NHS Complaint has been passed to 2 CEOs of Aintree Hospital, to the NHS Ombudsman, the CQC, the Coroner has been involved, but no one has effectively helped us with it.

If Aintree hospital has done nothing wrong why can't they answer our questions for us to have closure? This whole experience has totally devastated our family!!!

My father went into hospital with no terminal illness just CONSTIPATION to end up 8 months as a patient then dying on a CCU Ward without any explanation of what happened to him in the care of the hospital.

I am requesting for The Health Secretary to investigate into my father's medical records of when he was a patient at Aintree Hospital from 5th May 2012 to 31st December 2012 for clarification into how he ended up critically ill with sepsis, and accountability from the doctors who told us treatments were futile and an admission of what lead up to my father's avoidable death.

It is in the  Public Interest to act on what I am asking in this petition as our Court of Protection and Supreme Court  Cases were High Profile Landmark Cases which ruled that life saving treatments "were not futile" for my father when doctors were telling us they were "futile" How many other families are getting told this also?

My Family challenged the Doctors for months about dad's hydration levels and the administration of dangerous opiates including Morphine on a few occasions!!!!

We hope to prevent this happening to other Families and to help prevent Avoidable Deaths 

The End of Life Care plan is clearly getting misused on "the wrong patients" on hospital wards as comments from families across the Country attached to my petition show. These families feel needless avoidable  deaths are happening especially with the elderly.

 We as a family and the public are left devastated, confused, and in total disbelief of how loved ones are ending up severely dehydrated and heavily sedated on hospital wards...and feel it should form part of the Inquiry to help prevent further Avoidable Deaths.

It is everyones Human Right to receive treatments and correct fluid management control in hospitals its what doctors sign up to " The Hyppocratic Oath" for saving lives!. My Family also request for a meeting with The Health Secretary to hand this petition in person. 

We believe it is in the Public's Best Interests for this petition to be dealt with accordingly as what happened to my father can happen to any one of us!!! Thankyou ..... 

Kind Regards

Julie

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