Petition updatePetition to The Secretary of State for Health UK re: NICE guidelines on Lyme DiseaseNICE ABOUT TO PUBLISH: What does this mean to you?

Shelley CrantonCesky Krumlov, Czechia

Apr 8, 2018
In three days time NICE publishes its guidance on Lyme Disease. Whilst we still dont know the exact wording, we do know that unless they magically came up with new data or decided to radically change their review process that the guidance is based on data that :
a) didnt come from chronic Lyme patients including those with negative blood tests, those who carried Lyme symptom free for years and those who have been misdiagnosed with MS, MND,Parkinsons, Alzheimers ME,Fibromyalgia etc
b) isnt from children including those born with Lyme,
c) or pregnant women
The treatment they have dictated is NOT going to work for many thousands of patients who will only be offered symptom support after two short courses of antibiotics.
Once we have the final publication. i'll post an overview of any changes they've made (good and bad) into a petition update. Sign and you'll be the first to see it.
You dont have to be in the UK to sign. Every single signature indicates that one more person knows whats going on and cares, not just for those who have been diagnosed but for those who will be diagnosed in the future.
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