Petition updatePetition to The Secretary of State for Health UK re: NICE guidelines on Lyme DiseaseIs it better to stop the process now or wait for the media campaign?
Shelley CrantonCesky Krumlov, Czechia
Mar 20, 2018
Heres something positive. This was this morning so where it drops at the end will have already gone up. Yesterday we got 200 signatures!! Thats amazing! Maybe people are starting to realise that they have been had? If the government accepts that this process is flawed now, they can still halt it or reassess what they publish with some dignity. We could work with them to come up with better data and research whilst concurrently actually treating people. A big UK Lyme group are going to launch their anti-guidelines campaign after the publication. Thats going to be some embarrassing media attention for the process especially after 5000 of us have already pointed out that we saw its flaws and offered a way out. Even at this stage NICE could revise the text to state that "the evidence is poor and inadequate such that we are unable to produce guidance in respect of XYZ". It wouldn't involve reassessment of the data and their research recommendations would remain the same (or could be expanded further)
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