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End non-residential social care charges for older and disabled people.

Social care in any form is an equality and human rights issue.  It is an essential part of the infrastructure of a fair and just society which respects, upholds and guarantees the equality and human rights of its citizens. 

A society which pursues a policy of charging those who are entitled to use non-residential care services does not do this.  Instead care charging uncompromisingly demands that they pay more than any able bodied person to achieve the same basic human rights.   In some instances it can lead to a disabled individual deciding to forego much needed care and support, a decision which will entail significant risk of harm or further deterioration of an illness or condition.

For those who are obliged out of necessity to accept local authority care charges,  this situation often leads to a stunted life of poverty with insufficient resources to pay for anything more than the bare essentials of life, i.e. heating and food, at the level of spending deemed permissible by the local authority. 

 The realities of life will dictate little opportunity to improve living conditions, participate in the social and civic life of their community or save for that rainy day.  Forget about family event, such as a holiday or the wedding of a son or daughter.  Forget about putting aside a deposit for a new home.   Again, care charging in Scotland must be seen as representing a fundamental violation of a disabled individual’s legitimate freedom to enjoy basic human rights. 

For a variety of reasons the number of people affected by care charging has risen over the last 5 years.  This has brought to national attention a number of different anomalies. 

  • Bereavement Allowance, along with a number of other benefits such Widowed Parent’s Allowance and Industrial Death Benefit are treated as income for the purposes of charging meaning that up to 100% of these benefits can be taken in charges.
  • Terminal Illness can only feature as a condition for exemption in the calculation of care charges in the last 4 weeks of the person’s life.

 More people are being asked to pay more for their non-residential care services – including older people who don’t pay for personal care but do have to pay for domestic support or support to leave the house and meet friends.    Falkirk has introduced social care charging for the first time in the last couple of years.    Glasgow has both increased the amounts it charges and extended its charging regimes to thousands more older and disabled people. 

Scottish Government figures show that over the last three years, care charges throughout Scotland have risen on average by 12%.  Increases by some local authorities have been far more than that.  Aberdeen has more than doubled its income from care charging in the last 2 years, while West Dunbartonshire has more than trebled income from care charges.  

What has also been seen across Scotland is a huge variation in the charges for non-residential care services.  Last year the Audit Commission found that charges for a single hour of Home Care varied between £8.56 per hour and £23.70 in different areas.  Day Care for younger adults can vary between being free of charge and £175 per week.  Such variations have not decreased in the last ten years but have grown wider. 

The above mentioned are just two of the services for which a charge is made.  Aberdeen City, as an example, has a list of 24 chargeable services.   But it is not just the level of charges which lacks consistency.  The provision of services is normally subject to means testing which itself demonstrates a tremendous range of variation.  

The first variable is the minimum income threshold.  This is the level of income which a local authority believes that a disabled person should be able to live on, i.e. what is deemed a permissible level of “spending” per household.  COSLA recommends that this should be the Income Support level plus 16.5%, but local authorities across Scotland set this at different amounts.  For a single person under 60 it varies from £122 per week, in East Ayrshire, to £173 per week in neighbouring North Lanarkshire – both less than the ACTUAL amount of Income Support disabled people can get. 

Moreover, if in Scotland the minimum income threshold is Income Support plus 16.5%.  In England it is Income Support plus 25%.  In Wales it is Income Support plus 35%.  Scotland is unfortunately at the bottom of the list. 

In 2014 the poverty level for a single person in Scotland was set at £177 per week, 60% of median earnings.  Local authorities are routinely applying care charging to people already deemed to be in poverty. 

The second main variable is what is called the “taper” – effectively a tax on any income above the minimum income threshold.   Some local authorities take 100% of this income, others take 15%.  The current UK income tax rate on people earning more than £40,000 a year is only 40%.  Twenty six local authorities in Scotland tax disabled individuals at a higher rate. 

The third variable is in Disability Related Expenditure. It is a legal requirement in England to take account of any additional expenditure related to a person’s disability.  Not so in Scotland.  The overwhelming majority of local authorities in Scotland make no allowance for any additional costs on the grounds that the 16.5% additional allowance in the minimum income threshold is adequate!  And those which do take into account additional costs related to disability often have a very narrow view of what such additional costs actually are.  For example, Stirling only makes an allowance of between £4 and £6 a week for additional fuel costs for people who need to heat their houses up to 24 hours a day - £6 a week is equivalent to a 1KW electric fire for 7 hours a day.  In addition, guidance in England and from the Independent Living Fund recommends that any income from employment should be disregarded on the basis that to impose a care charge on this income could create a disincentive to work.  In Scotland, again, this is not the case.

The Case For Abolition Of Care Charges

  1. For users of it, social care is essential for their participation in society and their equal enjoyment of human rights.
  2. The Integration of Health and Social Care is making the process of care charging more complicated.  The Scottish Government accepts that there should be no charges for services supplied to meet health care needs but we are seeing the return of debates over the “Health Bath” v the ‘Social Bath’ and what agency should pay for them.  A person who gets staff support for a bath in their own home for health needs will not have to pay whereas if it is for social care needs then they will have to pay.  Similar complications occur over the administration of medication, rehabilitation, physiotherapy and occupational therapy.  As the integration of health and social care deepens, sorting out these distinctions will take up more and more valuable staff time. 

3.   The new Self-Directed Support (Scotland) Act 2013 has established the principle that carers should not be charged for services intended to support them in their caring role.  Some of these services - such as respite care - could just as appropriately be regarded as services to and for a disabled individual rather than for the carer.  That one arrangement would incur charges, while the other would not, highlights the arbitrary nature of care charging.

The national discussion around these issues is recognition that there are problems with the spread of care charges.  They put people off using services when their needs are relatively small, they unfairly penalise some people for having care needs and they may lead to people requiring much greater support in the future.   This is in direct conflict with the prevention agenda.

After working with COSLA for some time, we believe they can no longer offer the prospect of reform of the system.  Over the last 10 years, COSLA has never succeeded in standardising care charges despite claiming that its guidance aimed to do this.  Now COSLA is set to lose 25% of Scottish Local Authorities from its membership.  It will no longer be able to produce national guidance that will apply to all local authorities.

The problem will not be solved by the creation of a new agency to regulate local authorities, adding yet more layers of bureaucracy to the care charging system and undoubtedly fostering new forms of unfairness. 

Neither should it be solved by shifting the burden on to provider organisations through cutting payments which would risk tarnishing the relationship between service user and support provider.

 Rather it is time to recognise that non-residential social care is an equality and human rights issue and make it free at the point of delivery.  It is an essential part of the infrastructure of a just society in which the equality and human rights of all its members are fully respected and upheld.   This is the type of Scotland that all our citizens want to see.  

This petition has been lodged in the Scottish Parliament and supported by a number of user led organisations and other groups supporting people with disabilities. 

1.     Jeff Adamson

2.     Ian Hood, Coordinator, Learning Disability Alliance Scotland

3.     Frances Hawarden

4.     Etienne d'Aboville,  Chief Executive, Glasgow Centre for Inclusive Living

5.     Sally Witcher, Chief Executive, Inclusion Scotland

6.     Claire Cairns, Network Coordinator, The Coalition of Carers in Scotland

7.     Jim Elder Woodward, Chair, Scottish Campaign For A Fair Society

8.     Heather Fisken, Independent Living in Scotland project

9.     Pam Glancy-Duncan

10.  Florence Garabedian, Chief Executive,  Lothian Centre for Inclusive Living

11.  Andy Kerr, Chief Executive,  Sense Scotland

12.  Norma Curran, Chief Executive, Values Into Action Scotland

13.  James Blair, Policy Coordinator, Self Directed Support Scotland

14.  Tressa Burke, Chief Executive, Glasgow Disability Alliance

15.  Pat Onions, Co-Founder Pat's Petition

16.  Fiona Collie, Policy & Public Affairs Manager, Carers Scotland

17.  Sheila Scott, Chief Executive,  Inclusion

18.  Sam Smith, Chief Executive, C-Change

19.  John McArdle, Chair, Black Triangle

20.  Sam Cairns, Chief Executive, Equal Say

21.  Helen Hunter, Head of Service, Quarriers

22.  John Dalrymple, Chief Executive, Neighbourhood Networks

23.  Austen Smyth, Chief Executive, The Richmond Fellowship Scotland

24.  Ian Welsh, Chief Executive, The Alliance

25.  Florence Burke, Chief Executive, Carers Trust Scotland

26.  Suzanne Munday, Chief Executive,  MECOPP

27.  Dana O'Dwyer, Chief Executive, Capability Scotland

28.  Annie Gunner-Logan, Chief Executive, CCPS

29.  Peter Scott, Chief Executive, Enable Scotland

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    SCOTTISH PARLIAMENT

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