We have set up a fundraiser to cover various costs for Millie:
and here is an update:
Week 18 - Millie continues to deteriorate and struggle in the hospital environment.
A mediation meeting has been held via solicitors with the hospital Trust and family.
Millie now has an official diagnosis of ME/CFS accepted by the hospital.
Unfortunately, getting NG tube feeding at home no longer appears to be viable option and a PEG tube procedure is being offered as a route to get Millie discharged home with a suitable feeding solution.
Millie and family are worried about Millie’s extra fragile state to have this done but see it as her only viable route home.
Millie’s family have found a wonderful local care company with some understanding of ME/CFS to come into hospital for a few hours a day to meet Millie’s ME/CFS care needs in the mornings.
Some of the money already raised will cover this for a few weeks but if more can be raised this can cover more hours and more days for Millie to receive this support, which would really help her at this difficult time.
We would also like to use this care company plus maybe another nursing one once she is discharged home to provide her with ME/CFS sensitive care.
We are looking into council funding but we aren't sure if we will get it or get it fully.
As we have said we also want to use ME/CFS Drs to support Millie at home who are often mostly private so will also incur costs.
So your donations will really help Millie get the care she needs with her very severe ME/CFS.
Please can you help by sharing this fundraising link?