Thank you all again we’re going strong. 
Nearly every day a new person joins our ranks either looking for information, newly diagnosed or starting the fundraising journey to help. It’s more important now than ever to see changes to the attitude of our healthcare providers. Please continue to promote and share this petition or send an email to your local MP or write directly to Shane Reti minister of health or to Health NZ  demanding care, respect and treatment to those with AVCS that is currently denied to most. 
staying strong together.�