
Individuals with dystonia are more likely to experience anxiety and depression than the general population, and at higher rates than individuals with other chronic disorders. Studies have shown that as many as 70% of focal and generalised dystonia patients will experience depression and/or anxiety over their lifetime.
It would seem that individuals with the most severe dystonia symptoms are more susceptible to depression.
Regardless of the severity of Dystonia symptoms the presence of depression and/ or anxiety is among the most significant factors of a diminished quality of life!
Mental health professionals have recognised that coping with a chronic condition like Dystonia it is similar to grieving a loss.
Common phases of people dealing with Dystonia are Denial, Anger, Grief for the life you have lost, Fear, Depression and Acceptance.
In some cases the adjustment to the new you are are so drastic that the person’s experience is comparable to the symptoms of PTSD.
Neurologist’s are becoming more aware that people with Dystonia are likely at some stage to need help with their Mental Health!