Virginia families caring for children and adults with disabilities are facing multiple major Medicaid changes at the same time.

These changes affect the very systems that allow people with significant disabilities to remain safely in their homes and communities.

We are asking Virginia's leaders to listen to families before moving forward.

1. Virginia Is Proposing to End Services Facilitation
Virginia is proposing to end Services Facilitation within the CCC Plus, Community Living (CL), and Family & Individual Supports (FIS) waivers and replace it with Support Brokers through the Fiscal-Employer Agent.

Service Facilitators do far more than paperwork.

They help families understand Medicaid requirements, manage consumer-directed services, navigate authorizations, communicate with managed care organizations, resolve problems, understand their options, and advocate when necessary.

For many families, their Service Facilitator is an independent person who actually knows their loved one and understands their circumstances.

Families should not lose independent advocacy when they need it most.

2. Virginia Is Adding a 56-Hour "Soft Cap" to DD Waivers
Virginia is also seeking to establish a 56-hour-per-week soft cap on personal assistance services in the Community Living and Family & Individual Supports DD waivers, with an exception process for additional hours based on individual needs.

But disability does not operate on a 56-hour schedule.

Some children and adults require extensive assistance with eating, bathing, dressing, toileting, mobility, communication, behavioral needs, supervision, safety, and other activities throughout the week.

A person's level of care should be determined by their documented individual needs—not simply by an administrative threshold.

Families whose loved ones legitimately require more care should have a fair, accessible process for receiving those hours without unnecessary barriers.

3. Virginia Is Eliminating the Live-In Caregiver EVV Exemption
Beginning October 1, 2026, Virginia is requiring live-in caregivers to use Electronic Visit Verification (EVV).

This means caregivers who LIVE in the same home as the person with a disability will be required to clock in and clock out for their shifts using an approved EVV method.

For consumer-directed attendants using the mobile application, GPS must also be enabled for the shift to be considered EVV compliant.

We understand the need to prevent fraud and ensure Medicaid services are properly documented.

But a parent caring for a profoundly disabled child or another live-in caregiver is not arriving at a traditional workplace.

Their home is the workplace.

Many of these caregivers provide support far beyond their paid Medicaid hours because their loved one's disability does not begin when they clock in or disappear when they clock out.

Technology failures, forgotten clock-ins, GPS problems, phone access, app difficulties, internet or cellular issues, and other technical barriers should never jeopardize legitimate caregiver services or create additional hardship for families already providing extraordinary levels of care.

Fraud prevention should target fraud not unnecessarily burden families legitimately caring for people with disabilities.

Three Changes. One Community Carrying the Impact.
Taken together, these changes raise serious concerns:

The potential loss of independent Services Facilitation.

A new 56-hour soft cap for personal assistance in DD waivers.

And mandatory EVV for live-in caregivers who were previously exempt.

Families caring for people with disabilities already navigate Medicaid, doctors, therapies, schools, insurance companies, service authorizations, appeals, staffing shortages, and enormous caregiving responsibilities.

They should not continually have to fight the systems designed to support them.

What We Are Asking Virginia to Do
We respectfully ask Governor Abigail Spanberger, DMAS, and members of the Virginia General Assembly to:

Preserve meaningful, independent advocacy for individuals receiving consumer-directed services.

Reconsider policies that could unnecessarily restrict personal assistance based on a 56-hour threshold and ensure exceptions are accessible and based on actual individual need.

Provide reasonable protections, alternatives, and safeguards for live-in caregivers affected by mandatory EVV so technical problems do not result in the loss of legitimate services or caregiver compensation.

Include individuals with disabilities, parents, caregivers, attendants, and Service Facilitators in decisions that directly affect their lives.

We support accountability.

We support preventing fraud.

We support responsible stewardship of Medicaid funding.

But accountability should not come at the expense of people with disabilities and the families keeping them safely at home.

Our loved ones are not numbers on a spreadsheet.

They are children, adults, sons, daughters, brothers, sisters, and members of our communities.

Some cannot advocate for themselves.

So we will advocate for them.

Please sign this petition and stand with Virginia's disability community.

Protect their care. Protect their advocates. Protect their ability to remain safely at home.