To our supporters,

We have had the awful news that Alfie's license has been revoked. This means he now does not have a prescription. The Home Office has said due to the change in the law Alfie no longer needs a license. This is true he doesn't. But why did no one think about who might now prescribe for Alfie before his license was cancelled? 

The guidance issued by the BPNA prevents all its members from prescribing for children like Alfie and Tegan. So no doctor that we know of will prescribe without fear for their careers. Alfie has three weeks of his medicine left. My son is well and seizure free and he must not be allowed to become unwell. 

Tegan remains very unwell. Due to her mothers fight she now has secured Epidiolex for Teagan. Epidiolex is CBD oil only, we hope very much this will help but if it doesn't help enough Tegan and Emma should know that their doctors can prescribe full extract oil without fear. 

Please keep sharing this petition we need to make our voices heard. That the current guidelines are not good enough and penalise many thousands of people including my son Alfie and Emma's daughter Tegan.

We have to make our voices heard as these poor children can not speak out.

Thank you from the bottom of our hearts for supporting us.