More research for Endometriosis! End women’s health inequalities!

More research for Endometriosis! End women’s health inequalities!

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Belle Moore-Benham started this petition to Boris Johnson and

More research money needs to be put into Endometriosis research. At present a paltry few hundred thousand has been put in by the UK government to a condition more common than diabetes. Many women like myself end up in situations where we have to be our own experts because the biomedical system is so medieval. We are proffered with outdated and dangerous treatments which have little to no impact and have not been robustly researched. Scouring medical literature as our own consultants fail us with poor and ineffectual advice. NICE needs to align their guidelines of what endometriosis actually does to your life. More research needs to be done. This is a public health crisis propped up by sexism and racism inherent in the biomedical system.

Please don’t discount women’s pain. Please don’t make ignorance something that punishes women.

I will talk about #endometriosis until my last breath. I will talk about it because it’s more common than diabetes yet the UK government puts less money into research than a MP’s salary. I will talk about it because it takes everything in my body to not just send people dictionary definitions of what ‘chronic’ means. I will talk about it because apparently pissing yourself and going through pain equivalent to Labour every month several times is not enough for it to be a #disability. I will talk about it for every PIP advisor who doesn’t know what it is. I will talk about it for every person who says endometowhat? I will talk about it as it took over 25 years to ‘diagnose’. 25 years of bleeding through clothes, employer disbelief, partners confusion, friend denial and biomedical gaslighting. I will talk about it until women stop having their internal organs taken out in the naive and patriarchal belief that this somehow will alleviate a disease they can’t even be bothered to research. I will fight for it to be understood as the #autoimmunedisease it actually is. I will talk about it for all the #endometriosisfighters who took their own lives in lockdown as they were told their ‘benign’ condition wasn’t worth treating. I will talk about it because I regularly have to school my own consultants stuck in their stasis of biomedical ineptitude and sexism. I will talk about for all the indignities #womenofcolour have faced with #endo . Who were told ot was a white woman’s disease perpetuating the unhelpful ‘strong black woman archetype’. I will talk about because it sends me to a nadir of darkness where sometimes I cannot breathe for the dark cloak of grief. I will talk about it because they want to take my ovaries and put me through a medical menopause with scant research to this having any benefit to the obvious neurobiological machinations of the condition.    

Please. If you are reading this sign my petition (link in bio). Share it. Offer support to people suffering with this. To the indignity we face. If you share with one person maybe this can finally get the spotlight it so justly deserves.

I will talk about it because tears are not enough to change this endemic cruelty we put women through.

I will talk about it.

#endometriosis

I will talk about for all the indignities #womenofcolour have faced with #endo . Who were told it was a white woman’s disease perpetuating the unhelpful ‘strong black woman archetype’.

0 have signed. Let’s get to 1,000!
At 1,000 signatures, this petition is more likely to be featured in recommendations!