Novartis shouldn't put a price tag on babies' lives. (SMA)

Kampanya Kapatıldı

Bu kampanya 1 destekçiye ulaştı

Kampanya metni

Hi,

Everyday i see hundreds of posts on Instagram to ask for donations for babies who have an illness called SMA (Spinal Muscular Atrophy) and this is deadly. They are trying to raise an amount of 2-3 Million of Dollars for a drug called Zolgensma made by Novartis. That is the amount you have to pay, for your babies life. 

And the reason they are asking such an amount is, not the material they used or the money they spent for R&D for the drug, it is for quote "The reason Zolgensma is so expensive is because that is the price Novartis has decided it is worth because it “dramatically transforms the lives of families affected by this devastating disease”.

That is not a fair price that is ransom asked by Novartis.

Instead of playing to their hands and letting them to use our kids as hostage we need to force them lower the price.

No price tags, for babies' lives.

avatar of the starter
BARIŞ ÇETİNKampanyayı Başlatan Kişi

Karar Vericiler

Zolgensma
Zolgensma

Kampanya Güncellemeleri