Hi, I wanted to reach out and let you know that our two blogs are OUT NOW!! These blogs serve as an extension to our petition of reducing the price of Zolgensma for Spinal Muscular Atrophy. 

Rare Disease Day is tomorrow (February 28)!! It is one day in a year that calls attention for Decision and Policy Makers to make impactful shifts in bringing equal and affordable access to the prevention, diagnosis, and treatment of rare diseases. In showing your further support of the rare disease community, will you share our petition/blog on social media, email or call friends to bring more attention to the issue around drug prices for rare diseases? 

Here is a link to share:

http://chng.it/MSVmbBPSv7

SMA - BLOG (PART I)

SMA - BLOG (PART II)

We are also on:

FACEBOOK

INSTAGRAM

Thank you so much for standing up for change!

Ewelina