Hi! Thank you SO MUCH for your SUPPORT! We have passed over 3,500 signatures on our petition to reduce the price of Zolgensma that treats Spinal Muscular Atrophy. And yes, the SMA Community still needs your support!!
Do you know that Rare Disease Day is on February 28th of 2021 this year? About 1 in 20 people will live with a rare disease at some point in their life. For majority of rare diseases, there is no cure and many of them go undiagnosed. Rare diseases, globally, affect about 300 million people.
In showing your support of the rare disease community, will you share this petition on social media (Facebook, Instagram, Twitter, etc.) to continue raising awareness about this rare gene disease and the issue around it? Here is a link to this campaign:
Thank you!
Ewelina