My Response on Behalf of our Petition.

Good afternoon, I hope you are all enjoying your weekend. Thank you for everyone's continued support and hard work.

Please find below my response to NICE's email. 

Hello Helen,

Thank you for your email. I appreciate your time and information. On behalf of myself and my petition follows, we have a few areas of concern we would like to discuss.

1. The treatments and medications the proposed changes may take away; will dramatically reduce quality of life for many and take away all quality of life for many of us. Several of said it would make them suicidal and the majority of tried the other methods suggested in the NICE guidelines to manage their chronic pain.

2. The majority of us have experienced medical gaslighting as chronic pain is so misunderstood and unfairly judged. Many of us have had to fight an exhausting battle with health and medical professionals just to receive effective treatment or medication that is currently under NICE guidelines. If it was no longer under NICE guidelines; many of us would have no chance in receiving the treatment/medication we need to have at least some quality of life.

3. We are concerned about new patients who will experience chronic pain in the future. That they will not even have the opportunity to have effective treatment such as opioids, infusion Therapy etc if other methods have not been successful.

Thank you for your time,

Best wishes,

Claire Swain