This account was provided by a mother who wishes to remain anonymous :

In June we were accepted for autism assessment for my 12 year old daughter by National Autistic Society's Lorna Wing.

I'd sent them info explaining how my daughter met the traits of the PDA profile.

When they rang me, in June, to accept her referral, they said they could diagnose autism with a demand avoidant profile, but not PDA.

By the time we got her final report, they'd changed the description of PDA on their website.

Despite me pressing them, they refused to give my daughter a diagnosis of autism with a demand avoidant profile. They instead mentioned demand avoidance in various paragraphs across various pages in the 45 page report they produced. This was not helpful at all.

When I pressed them again, pointing out that my daughter had about every trait given on PDA Society's website, they just kept saying "that’s autism".

I sent a complaint to Lorna Wing Centre.

I can't understand why they're being so underhand about all of this. The diagnosis they gave my daughter isn't what they told me they could provide during our initial consultation.

I sought advice from PDA Society, but National Autistic Society are now ignoring them!

I’m very cross and disappointed about it because because Lorna Wing told me they could diagnosis autism with a demand avoidant profile, and I paid a lot of money and travelled a long distance for my daughter's diagnosis, but then they told me they couldn't give this diagnosis!

Weirdly, I rang Lorna Wing Centre to make an anonymous enquiry the other day about whether they could diagnose the PDA profile and they said yes!?