I’ve been quiet on here for a while, and I'd like to share why.

 Lately I’ve been struggling a lot—physically, mentally, and emotionally.
After all the fighting to get back onto Tysabri IV, I’ve now been diagnosed with secondary progressive MS. The plan is to switch to siponimod (if I’m physically eligible), which is a hard step to come to terms with.

I always knew my MS would progress one day, but I feel 100% certain that my progression has been brought on by the switch from Tysabri IV to Tyruko It’s been heartbreaking to see the difference.

There are so many people still fighting to get back onto Tysabri IV, and they are being stonewalled.
All the while, their MS is worsening.

So the question still remains,  why are the hospital trusts not letting these patients have their right to switch back? 

MS patients are for the first time in years experiencing worsening symptoms, relapses,  and new lesions. And they can all pinpoint this to the time they moved from Tysabri IV to Tyruko. 

This is serious, and it is gambling with people's lives, all to save money.

I am going to start trying to gather together new information on these experiences, as together, our voices are stronger. 💙