Julie CowdrillBirmingham, ENG, United Kingdom
May 23, 2025

Personal update

I have been inundating my MS team with letters, my survey data I collected, my change.org petition, and other evidence Ive gathered in support of going back on to Tysabri.

I was informed several times, by my MS team, that Tysabri IV is no longer an option. However, I have still been stressing to them, that I must be reinstated Tysabri. As I am falling apart.

Now, six months on, my MS nurse has tried to reassure me, that my neurologist is not ignoring me [I have had no communication back from him the whole time], that he is working behind the scenes to see if, and how, he could possibly get Tysabri IV back. It has sometimes felt deflating, that I have had to be relentless in my mission, just to get back my medication that has being doing wonders for me over the last 14 years!

However, this is the first sign of progress. 

 

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