As you may have heard, there are two new Canadian Lyme disease research networks that have formed with the goal of seeking funding and conducting Canadian based research into Lyme & related diseases. The overwhelming majority of the Canadian Lyme disease patient / advocacy groups (including LymeHope) have chosen to exclusively support one network - called the “Canadian Lyme Consortium” (the “CLC”). The CLC is a volunteer research network which includes medical professionals, academics, scientists, Lyme disease patients and advocates – with the goal of creating an inclusive, and collaborative team to advance patient-centred Lyme disease research in Canada. The CLC believes that by drawing on the passion, creativity, knowledge, experience and skills of the Lyme community across Canada, as well as their families, they can help change the narrative around Lyme in Canada through ethical science. The CLC believes that patients need to be meaningfully engaged from the beginning. As a first step, the CLC has prepared a survey to seek input from Lyme patients and supporters which will help guide the way forward. We are inviting everyone to complete the survey which will only take a few minutes of your time. One of the hallmarks of the CLC is commitment to patient engagement. The short survey linked here asks the patient, caregiver and advocacy community input on how meaningful engagement should be accomplished. The links to the survey in French and English are below. We look forward to providing more updates from the CLC as projects are launched. In English: https://www.surveymonkey.com/r/CJDXNLT In French: https://www.surveymonkey.com/r/T3G8378 Thank you. With Hope, Jennifer Kravis & Sue Faber Co-Founders LymeHope www.lymehope.ca