PATisiran for PAT

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Rose Barrett O'donoghue started this petition to Minister for Health and

​Pat Tinsley is 64 years of age and lives with hATTR (Hereditary Amyloidosis)...a debilitating and fatal disease which is ravaging his body and causing his vital organs and nervous system to dangerously malfunction.

With a prognosis of 2 to 10 years, time is rapidly running out for Pat while the HSE debates whether his life and 30 others like him deserve to get treated with the new and effective drug called Patisiran which is showing remarkable results with patients receiving it in the US, the UK, Germany and other European countries.

While the treatment is approved by the NHS in Great Britain and in Northern Ireland, it is not, as yet, approved by the HSE here.

Pat has lost 50lbs since his diagnosis two years ago and his health continues to decline on a daily basis.

Please sign the petition which will be presented to the Minister for Health, Stephen Donnelly TD and to the HSE.

End Pat’s suffering and those of others, who ‘exist’ with Hereditary Amyloidosis – it is only an existence, not a life. 

Please share and encourage others to sign!
FRIENDS OF PAT TINSLEY

0 have signed. Let’s get to 5,000!
At 5,000 signatures, this petition is more likely to get picked up by local news!