Petition updateMake Soliris (Eculizumab) Available for Dialysis Patients with aHUS in Australia.
Next: Sign this petition! Stop the Australian government from experimenting with patients with aHUS.

Jeff SchmidtRoyersford, PA, United States

Nov 14, 2016
Thanks to the 44K+ who signed the petition to help those in Australia with aHUS who are on dialysis and have no access to the life-saving drug Soliris.
Now the Australian government wants to experiment by forcing patients with the disease aHUS who have been receiving the life-saving drug Soliris for the last 2 years, to stop this medication in December 2016. They want to experiment and see if this causes a relapse that could cause kidney failure, other major organ failure, or even death.
Atypical hemolytic-uremic syndrome (aHUS), is a genetic, chronic, life-threatening blood disease that has no cure. Stopping medication arbitrarily after 2 years makes no medical sense. The decision to stop should be made by the doctor along with the patient, not the government!
So please sign the following petition to pressure the Australian government to NOT stop access to Soliris to these patients. You can make a difference!
https://www.change.org/p/the-hon-sussan-ley-mp-australians-with-ahus-forced-to-stop-the-life-saving-drug-soliris-to-see-what-happens
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