Mise à jour sur la pétitionMake reproductive surgeries more accessible for womenhow far can endometriosis spread?
Lisa WelkeBowmans, SA, Australie
10 nov. 2025

Todays question out of curiosity: How far can endometriosis spread in your body?

Endometriosis most commonly affects the pelvis, but it can spread throughout the body and has been found in the lungs, diaphragm, bladder, bowel, and in very rare cases, even the brain and eye. This spread can occur through the lymphatic and vascular systems, or potentially through coelomic metaplasia (tissue transformation). 

Common locations outside the uterus

Ovaries

Fallopian tubes

Peritoneum (the tissue lining the abdomen)

Bowel and appendix

Bladder 

Less common but reported locations

Lungs

Diaphragm

Kidneys

Abdominal scars

Muscles (such as the gluteal muscles) 

Very rare locations

Brain

Eye 

Why do we have to wait for it to spread before we are listened to? Why can't we just ask to have a hysterectomy? We are taught "my body, my choice" yet as grown women we are shown, we DON'T have choice or control over our own bodies! We are treated as though we are OBLIGATED to bear children.

Keep signing! Keep sharing! We need change! 

Thank you! Appreciate you!

Lisa Welke 

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