On behalf of Dorothy Spourdalakis, Alex's mother and according to first hand eye witnesses and Dorothy Spourdalakis, Alex's mother:
We are reaching out on a Global Level to ensure the health and well being of all individuals without delays or prejudice due to any disability or other protected category.
According to first hand eye witnesses and Dorothy Spourdalakis, Alex's mother:
Alex Spourdalakis, is a 14 year old nonverbal autistic child that as of March 15, 2013 is an inpatient at Loyola Medical Center in room 2243 in Chicago Illinois. He has severe autism and had been kept there, on an adult floor, since his transfer from Gottlieb Hospital on 2/28/2013.
Alex remained in locked restraints to all four of his limbs for in excess of 20 consecutive days, including the days he previously spent at Gottlieb held in an ER bay for approximately 14 of those days, unable to be admitted into a room.
Alex's basic human needs were not met.
Alex did not have any accommodations for his disability.
Alex did not have anyone attempt to provide him the ability to communicate.
Alex has not been held in the least restrictive environment and the frequent assessments for his need to be restrained, as required by regulatory agencies and hospital policy, were not performed.
Not one professional that specializes in autism had examined him.
Alex was kept in locked restraints without any written plan to work towards release. Alex was denied medical care and intervention by this facility that he was specifically transferred there to receive.
Alex's mother had been denied a list of physicians in charge of his care.
His mother had been denied a list of medications that are ordered for her child.
His mother did not have access to a phone inside the patient room in order for her to access resources.
He had not received any medical services other that psychiatric medications, restraint and seclusion since he arrived.
He had a delay in treatment waiting 5 days for an ordered consultative physician to see him and one additional day until he was examined by a specialist for his gastrointestinal problems, the very reason he was transferred to this facility.
He had been held in restraints while the physicians had ordered and then cancelled this procedure.
He was not being provided appropriate foods as he has many food allergies.
He did not have access to any specialized evaluations or services from any professionals such as occupational health, speech therapy, developmental pediatrician or behavioral specialist who might have been able to address his disability.
He was being denied medical care and accommodations for his disability of autism and his mother was purposefully being separated from him and threatened by hospital staff.
His pain had not been assessed or treated.
None of the many standardized assessment tools for nonverbal patients had been utilized and his mother was told that staff is “unable” to determine if he is having pain.
He has not been medicated for pain.
What we are asking Loyola Medical Center, Maywood, Chicago, Illinois to do:
Provide Alex Spourdalakis with Immediate Medical Testing and Medical Treatment without further delay.
Allow one of the many Autism Doctors who specialize in Gastrointestinal Disorders of Autistic Individuals that has been presented to you and your staff take the lead on his medical treatment plan and care.
Provide his mother Dorothy Spourdalakis a list of medications that are ordered for her child.
Provide a phone inside Alex's room in order for her to access additional resources to ensure the safety, health and well-being of her child.
Remove all restraints and orders for such.
Move him to the pediactric wing of the hospital.
Consult with Dorothy Spourdalakis and a Autism Medical Specialist to ensure Alex's dietary needs are met to ensure his food allergies and intolerance's are not aggravating any underlying gastrointestinal or other medical conditions that may also cause adverse behaviors.
Provide and allow Alex and his mother Dorothy access to specialized evaluations and services from any professionals such as occupational health, speech & language therapy, developmental pediatrician, Autism Medical Doctor and positive behavioral specialist who have the background and education in working with children with autism.
Put safeguards in place to ensure Dorothy, Alex's mother has full access to her son and his care without harassment by hospital staff.
Demand all hospital workers who enter Alex's room, are a part of either directly or indirectly, his care, be educated in working with and communicating with children with special needs. Demand they wear their name badges in full view.
According to eye witnesses and Dorothy Spourdalakis, Alex's mother; The following patient rights, as outlined by JCAHO, have been violated:
You have the right to be informed about the care you will receive.
You have the right to get important information about your care in your preferred language.
You have the right to get information in a manner that meets your needs, if you have vision, speech or hearing, or mental impairments.
You have the right to make decisions about your care.
You have the right to refuse care.
You have the right to know the names of the caregivers who treat you.
You have the right to safe care.
You have a right to have your pain addressed You have the right to care that is free from discrimination because of physical or mental disability.
You have the right to get a list of all your current medications.
You have the right to be listened to.
You have the right to be treated with courtesy and respect.
************On February 16th, 2013, Dorothy Spourdalakis had to take her non-verbal child to the ER at Gottlieb Hospital in Melrose Park, IL. At that time, 14 year old Alex was inconsolable, highly-distressed and suffering bouts of violent vomiting, severe constipation and diarrhea. According to Dorothy, Alex has a diagnosis of severe autism and cognitive impairment.
For 12 days, Gottlieb's staff kept Alex in 4 point physical restraints within the ER, never admitting him formally into the hospital and finally transferred him to Loyola. The transfer to Loyola University Medical Center in Maywood, IL was based on their ability to better assist with pediatric gastroenterology, neurology and anesthesiology. Up until a few days ago, Alex was still in physical restraints but now has a security guard posted at the entrance of his hospital room, located on an adult floor versus a pediatric floor.
The mother, Dorothy and multiple advocates have spoken with Loyola staff regarding a care plan for Alex. The doctors at Loyola, along with hospital administrators, continue to ignore the requests for diagnostic testing and only offer psychiatric medications but unfortunately Alex is still very much in pain. Please help us support Alex and Dorothy so they may receive the respect and medical care they so desperately deserve.
Day 19: http://www.ageofautism.com/2013/03/day-19-loyola-chicago-hospital-locks-down-autistic-patient.html
Day 21: http://www.ageofautism.com/2013/03/alex-spourdalakis-loyola-medical-center-ineptitude.html
Day 22: http://www.ageofautism.com/2013/03/day-22-autism-agony-at-loyola-u-medical-center-.html — at Loyola University Medical Center-Loyola University Health System.
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