Please use your influence, connections, and substantial voice to press for more research into a different life expectancy for people of color who have Down syndrome.

Please use your influence, connections, and substantial voice to press for more research into a different life expectancy for people of color who have Down syndrome.

The Issue

Previous research  has shown that people of color who have Down syndrome have a significantly shorter life expectancy than their peers who are Caucasion. The limited research on this topic is old and does not address potential causes. As a community, we should be pressing for more information.

In a recent article Global spokesperson Beverly Johnson is quoted:

"There's a remarkable disparity between children of color who get Down syndrome — life expectancy is age 23 — and non-black children with Down syndrome — life expectancy is 63 years old." 

Please make this issue a top priority and help us advocate around this issue.

avatar of the starter
The Road We've SharedPetition StarterThe Road We've Shared is an online community by and for parents and caregivers of adults who have Down syndrome.
This petition had 136 supporters

The Issue

Previous research  has shown that people of color who have Down syndrome have a significantly shorter life expectancy than their peers who are Caucasion. The limited research on this topic is old and does not address potential causes. As a community, we should be pressing for more information.

In a recent article Global spokesperson Beverly Johnson is quoted:

"There's a remarkable disparity between children of color who get Down syndrome — life expectancy is age 23 — and non-black children with Down syndrome — life expectancy is 63 years old." 

Please make this issue a top priority and help us advocate around this issue.

avatar of the starter
The Road We've SharedPetition StarterThe Road We've Shared is an online community by and for parents and caregivers of adults who have Down syndrome.

The Decision Makers

National Down Syndrome Congress
National Down Syndrome Congress
David Tolleson, Executive Director
Global Down Syndrome Foundation
Global Down Syndrome Foundation
Michelle Sie Whitten
National Down Syndrome Society
National Down Syndrome Society
Jon Colman
International Down Syndrome Coalition
International Down Syndrome Coalition
Michelle Slape

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