Petition Closed

Letter to U.S. Secretary of Health from P.A.N.D.O.R.A.

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CALL TO ACTION

PANDORA REQUESTS U.S. SECRETARY OF HEALTH KATHLEEN TO MEET WITH US AND ADDRESS THE LACK OF PRIORITY AND FUNDING IN THE UNITED STATES FOR SCIENTIFIC RESEARCH AND OTHER RELATED PROGRAMS FOR CHRONIC FATIGUE SYNDROME (CFS) ALSO KNOWN AS MYAGIC ENCEPHALOMYELITIS or ENCEPHALOPATHY (ME). 

 
It is estimated that 20 MILLION AMERICANS are stricken by NeuroEndocrineImmune Diseases such as chronic fatigue syndrome (CFS)-myalgic encephalomyelitis or encephalopathy (ME), fibromyalgia (FM), Gulf War syndrome/illness (GWS-I), multiple chemical sensitivity (MCS) and chronic Lyme disease (CLD).

The U.S. Secretary of Health and Human Services, Kathleen Sebelius states on her web page that "Our goals for all Americans is to live healthier, more prosperous, and more productive lives." This is the same goal of P.A.N.D.O.R.A. for individuals stricken with NeuroEndocrineImmune Disorders, and yet for the past 7 years all of the recommendations o the Chronic Fatigue Syndrome Advisory Committee has made to past and current U.S. Secretaries of Health have not been executed. Not a single ONE recommendation has been put in place. Why not?

Click here for our latest Press Release Call to Action on this subject, dated August 25, 2010 - http://www.pr.com/press-release/258171

 

SISTER PETITION ON FACEBOOK

This is the sister petition for the petition already posted on the NeuroEndocrineImmune (NEI) Center(tm) Cause-Project, on "Causes" on Facebook. The NEI Center(tm) is a project of P.A.N.D.O.R.A. - Patient Alliance For NeuroEndocrineImmune Disorders Organization for Research and Advocacy, Inc. in partnership with the Lanford Foundation-Lifelyme (tm), Inc and other patient groups.

As of September 27, 2010, the Facebook sister petition is 2,219 signatures strong.  We have been asked by many of our supporters to bring a sister petition to another site. 
We did an we have also edited this petition to reflect the changes since we started the one in Facebook.  

REASONS TO SUPPORT AND SIGN THE PETITION

When you sign this petition you are supporting P.A.N.D.O.R.A. and its collaborative partners in getting a response from the Office of the Secretary of Health for a meeting with the U.S. Secretary of Health & Human Services, Mrs. Kathleen Sebelius to ensure her support for aggressive and substantial funding for the NEI Center(TM) and other similar facilities throughout the U.S. and as well as the other items listed on our letter to the U.S. Secretatry of Health. Please sign this petition today and forward to your friends and family. We can no longer ignore the physical, financial and emotional toll that these illnesses take on the fabric of communities across the U.S.

Patient with NEIDs deserve the same quality of life and investment dollars in scientific research and patient medical care, that their neighbors and other individuals with other illnesses are currently experiencing and receiving. The time for change is NOW. Sign off on this petition and make sure you get at least 5 people to sign off too.Thank you for participating in this amazing grass roots effort. We need your support now more than ever!

In Good Health and In Beauty,
Marly C. Silverman,
Founder, P.A.N.D.O.R.A.- Patient Alliance For NeuroEndocrineImmune Disorders Organization for Research and Advocacy, Inc.

This petition was delivered to:
  • U.S. Secretary of Health & Human Services
    Mrs. Kathleen Sebelius


    PATIENT ALLIANCE NEUROENDOCRINEIMMU DISORDERS ORG FOR RESECH & ADV started this petition with a single signature, and now has 335 supporters. Start a petition today to change something you care about.