Victory

Fund Fampyra for People with MS in Ireland

This petition made change with 3,869 supporters!


8000 people and their families live with MS across Ireland. MS is a progressive neurological condition with no cure. Fampyra is a proven drug which has the potential to increase walking ability in people with all types of MS. It works by enabling damaged nerves to transmit electrical signals more efficiently. Unfortunately it only works for approximately one third of people who have MS but when it works the results can be amazing. By making nerve conduction more efficient it has the potential to enable a person to walk more easily, walk faster, manage stairs better, and feel more confident getting around. Due to improved nerve conduction it could even be the difference between remaining in the workplace or not. The National Centre for Pharmacoeconomics have refused funding for Fampyra as it is not deemed to be cost effective. Therefore people with MS and their families are being asked to pay between €300 and €500 per month themselves. This is far beyond the reach of most people with MS and their families. The drug is not covered by the Long Term Illness card or the Drug Repayment Scheme. Supporting people with MS to live their lives more independently, remain in the workforce and have a better quality of life makes good sense. Please stand with us today and sign this petition to advocate for this invaluable drug Fampyra to be funded for people with MS and our families. Sincere thanks.



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Triona Bromwell needs your help with “Kathleen Lynch: Fund Fampyra for People with MS in Ireland”. Join Triona and 3,868 supporters today.