Jess's Rule - Improve the awareness and diagnosis of cancer in young adults.

Recent signers:
Maureen Erdwin and 19 others have signed recently.

The Issue

Our precious daughter, Jessica, died on the 20th of December 2020. She was 27 years old.

She had been ill for 6 months, but the spring/summer lockdown meant face-to-face consultations with her GP were restricted and numerous antibiotics were prescribed, even in the absence of a physical examination. Jessica was told for months she was suffering from Long Covid despite two negative coronavirus tests. She was finally diagnosed with cancer on the 26th of November. Her dependency upon oxygen from this date meant she did not leave the hospital or ever return home. We discovered that Jess had stage 4 adenocarcinoma with an unknown primary. It had spread throughout her body, to her spine, liver, stomach, lungs and lymph nodes. We are obviously devastated. Our world has been shattered.

Adults aged 25-49 contribute around a tenth of all new cancer cases, with double the incidence in females than males.

Currently, this age group is not prioritised although many cancers are aggressive and require immediate treatment. Despite being too young to be ignored they often are. They are the forgotten generations. Too old for their diagnosis to be truly shocking and too young to be deemed at serious risk. Covid is undoubtedly exacerbating the situation.

This government must ensure no more young lives are tragically and unnecessarily lost.

  • Jess's Rule - official guidance calling for a patient’s case to be elevated for review after the third contact with their GP surgery about a condition or symptom.
  • Funding must be ring-fenced to allow GPs to respond with utmost urgency in referring ALL patients.
  • Steps must be taken to facilitate an increase in face-to-face consultations.
  • Once referred, hospitals require more specialist staff and equipment to make the immediate and necessary diagnosis.
  • Campaigns, directed at medical professionals in Primary Care, are essential to increase awareness about the incidence of cancer in people in their 20s, 30s and 40s.

Action must be taken.

Victory
This petition made change with 465,480 supporters!
Recent signers:
Maureen Erdwin and 19 others have signed recently.

The Issue

Our precious daughter, Jessica, died on the 20th of December 2020. She was 27 years old.

She had been ill for 6 months, but the spring/summer lockdown meant face-to-face consultations with her GP were restricted and numerous antibiotics were prescribed, even in the absence of a physical examination. Jessica was told for months she was suffering from Long Covid despite two negative coronavirus tests. She was finally diagnosed with cancer on the 26th of November. Her dependency upon oxygen from this date meant she did not leave the hospital or ever return home. We discovered that Jess had stage 4 adenocarcinoma with an unknown primary. It had spread throughout her body, to her spine, liver, stomach, lungs and lymph nodes. We are obviously devastated. Our world has been shattered.

Adults aged 25-49 contribute around a tenth of all new cancer cases, with double the incidence in females than males.

Currently, this age group is not prioritised although many cancers are aggressive and require immediate treatment. Despite being too young to be ignored they often are. They are the forgotten generations. Too old for their diagnosis to be truly shocking and too young to be deemed at serious risk. Covid is undoubtedly exacerbating the situation.

This government must ensure no more young lives are tragically and unnecessarily lost.

  • Jess's Rule - official guidance calling for a patient’s case to be elevated for review after the third contact with their GP surgery about a condition or symptom.
  • Funding must be ring-fenced to allow GPs to respond with utmost urgency in referring ALL patients.
  • Steps must be taken to facilitate an increase in face-to-face consultations.
  • Once referred, hospitals require more specialist staff and equipment to make the immediate and necessary diagnosis.
  • Campaigns, directed at medical professionals in Primary Care, are essential to increase awareness about the incidence of cancer in people in their 20s, 30s and 40s.

Action must be taken.

The Decision Makers

Wes Streeting
Wes Streeting
Secretary of State for Health and Social Care
Responded
You did it. You made a difference in Jessica Brady’s name. More than 465,000 of you signed her parents’, Andrea and Simon’s, petition to campaign for changes in the way GPs and other clinicians assess and diagnose serious illness. Thanks in no small part to you, alongside the incredible campaigning of her family and friends, Jess’s Rule is now rolling out across the NHS in England. Jess didn’t receive the early-stage cancer diagnosis that could have saved her life, not even after attending more than 20 NHS appointments at her general practice, over a five-month period. Now, when patients return three times with worsening or undiagnosed symptoms, GPs across England are being asked to reflect, review and rethink by default. A fresh pair of clinical eyes could make the difference between a life cruelly cut short and a long life lived to the full. I know how welcome this news will be to anyone worried that their health concerns may be discounted, misdiagnosed or ignored. That’s why I was determined to see Jess’s Rule made a reality. At the same time, the government has invested in an extra 2,000 GPs, so doctors have more time to spend with patients. And we’re opening up community diagnostic centres at evenings and weekends, to cut waiting times for tests and scans. As a cancer survivor myself, I’m doing everything I can to help catch cancer earlier and treat it faster. Your support has helped Jess’s parents achieve a fitting legacy for their daughter and a second chance for thousands of patients. Thank you.
The department of health and social care
The department of health and social care

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Petition created on 26 January 2021