Petition updateGive every mother the chance to save people like Ruby with cord blood donation.Great news from Ruby! (And an event in Liverpool).

Elspeth FullerEnfield, ENG, United Kingdom

Apr 5, 2017
The following is from Ruby's Facebook page:
Don't believe in miracles? Well, read this.
Imagine you have a diagnosis of Acute Lymphoblastic Leukemia (ALL), which only around 650 people in the UK get each year (most of which are sadly children under 5). On top of this, you also have the type of complex cytogenetics that can make treatment and finding a bone marrow donor more difficult. Throw in an unusual Salvadoran background with a sketchy ethnic make up and it's easy to believe your consultants when they look at you with pity in their eyes and say you are not likely to find a donor match. "It's great what your friends are doing", they say "by all means, keep going. But please don't get your hopes up". And hope is what you long for but these are the experts who know every complex detail of your make up. It's very difficult not to believe them.
On the other hand, just as your morale is disinflating like an old balloon, friends and family, even strangers, begin pumping you with love and hope like crazy, determined that a match must be found. They hold you hostage. To them, there is no alternative and they are not taking no for an answer. They pray and they act. They say it's just a matter of time, a matter of finding the right medium, the right number of people and attracting the most attention. Their enthusiasm and determination is contagious. You feel guilty that you will disappoint, after all you know all the reasons why it's too difficult to help you, but soon you're thinking 'maybe just maybe, it could happen' ....
And guess what has happened? Guess who, despite all the odds, has found a 9/10 bone marrow match??
ME!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I know nothing about my match except that they are somewhere in Brazil and they were not on the international register a few months ago.
I have an eye infection from all the tears of disbelief I've shed when telling people recently. If everything goes as planned, my transplant, my second birthday, will be in early May. Even if something happens, even if for whatever reason the transplant does not go ahead or fails, know that this has happened against all odds, know that absolutely anything that involves love, prayer and supernatural levels of hope is possible. I'm not sure I'll ever recover from the shock I felt on receiving the news. It is simply absolutely AMAZING!!!
Thank you God, from the bottom of my heart, for showing me what love in action looks like, for surrounding me with people with such amazing hearts and determination. Thank you all for helping to get the word out and making this possible!!! Lets keep going, lets keep speaking on behalf of others like Tan, Kate, baby Austin and little Valerie so that they can also have a chance at finding a bone marrow match. We can do it, we can help diversify the international bone marrow register!!!
Sorry for all the exclamation marks. I have only a couple of weeks before I need to go back to hospital. I have so much to do beforehand, I most probably will not be able to visit Facebook often but I will keep you updated soon.
Sending so much love and some flowers from our garden xxxx
Ruby
***
From Elspeth:
This news is obviously so fantastic that we don't know what to do with ourselves!
But, as Ruby says, there are still so many people out there waiting for their own miracles.
The donor drives will continue - anyone in Liverpool tomorrow can go along to BBC Radio Merseyside (Liverpool 1, 31 College Lane, Hanover Street, L1 3DS) to register to go on the Stem Cell Register as an adult there and then - as will this petition and our other efforts (though there will obviously be changes to come).
To be someone's miracle, if you are between 17-55 and in relatively good health, please also check out www.dkms.org.uk.
Thank you!
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