NHS England have written a draft policy for the use of Eculizumab for DDD patients post-transplant and have now issued that for public consultation. Matty still has his own kidneys - and we are fighting to get Matthew treatment before he needs a transplant - so this policy will not directly help us, but it is a step in the right direction and will (if approved) help other children with the same condition such as Abi and Lewis. There are many flaws in the policy as it stands and we will be very active in feeding back to the consultation to get these addressed as fully as possible. However, there is one key feature of the policy document which is very positive and is worth bringing to the attention of all of Matty's supporters and other users of Change.org. In the past, the NHS response has always been - in summary - "There is no evidence that this drug works for DDD patients and it is very expensive". This policy now says "NHS England has concluded that there is sufficient evidence to support a proposal for the routine commissioning of this treatment for the indication." Well said NHS - and about time. The evidence has long been there and has not changed but the NHS, or more likely this government, have previously chosen to ignore this evidence. Now the pretence has been dropped and this is simply about money. We fully appreciate that public money has to be carefully controlled but when a drug is made available to some patients then it should be available to all patients who will benefit, without arbitrary sub-divisions made on non-clinical grounds. The final battle then is get the powers that be to understand – what the rest of the world can clearly see – that it is nonsensical, immoral and unethical to make a child wait until their kidneys fail and they have had a transplant before giving them the treatment that they need. Not only does this have a lifelong debilitating effect on the child in question but it also takes away a transplant kidney which may otherwise be used to save another life. Thanks for your support and keep watching this space.