On Thursday, March 5th, I will attend the Patients’ Listening Forum at the Department of Health as an independent campaigner.

This is not about division.

It is not about conflict.

It is about safeguarding, governance, and ensuring patients are protected within the systems designed to serve them.

As someone who will have stood on the steps of Leinster House four times since the Endometriosis Motion last July, and who has worked for over three decades to access trauma-informed care, I believe reform must be accompanied by transparency.

These are the questions I will be raising:

• How are charities being governed in relation to the Endometriosis Framework?
• What due diligence was undertaken in selecting the Task Force?
• Who sits on the Task Force, and how is patient GDPR being protected?
• In relation to the ESAIS application process, who is signing off on official communications and how is GDPR compliance being ensured?
• How are independent support groups  including social media platforms  moderated, and what GDPR safeguards are in place?
• Following recent defamation of my name and ownership of my project, how are anonymous posts being handled under GDPR protection frameworks?

This work has always been about vetting individuals appropriately and safeguarding the entire community - not silencing voices.

Reform without accountability is not reform.

Transparency builds trust.

If you support transparency in patient representation and safeguarding within our healthcare structures, please continue to share this petition and stand beside independent voices asking necessary questions.

Míle maith agat.

Doireann Barrett

Independent Campaigner