FOLLOWING AN INSTAGRAM POST FROM OUR NATIONAL ENDOMETRIOSIS CHARITY - WE ARE LEARNING THAT THERE WILL BE A DELAY IN THE PUBLICATION OF THE ENDOMETRIOSIS FRAMEWORK THAT WAS PROMISED BY PAST MINISTER OF HEALTH - STEPHEN DONNELLY
THIS WAS DUE TO BE PUBLISHED IN 2025
WHAT IS THE DELAY & WHY?
OUR ENDOMETRIOSIS COMMUNITY DESERVE BETTER
WE SHOULD NOT BE LEARNING THIS THROUGH A SOCIAL MEDIA POST
ALL MEMBERS OF OUR NATIONAL CHARITY SHOULD HAVE BEEN CONTACTED THROUGH EMAIL OR TELEPHONE CORRESPONDENCE TO BE UPDATED - THAT IS THE RESPONSIBILITY OF NATIONAL CHARITIES
THE ENDOMETRIOSIS COMMUNITY SHOULD NOT BE SELF ADVOCATING
THE ENDOMETRIOSIS COMMUNITY SHOULD NOT BE SEARCHING FOR MEDICS WHO UNDERSTAND ENDOMETRIOSIS
THE ENDOMETRIOSIS COMMUNITY SHOULD NOT BE FORCED TO LEAVE IRELAND FOR SPECIALIST CARE
WE DESERVE BETTER
WE DESERVE TO HAVE ORGANISATIONS THAT WE CAN TRUST AND WHERE WE CAN ACCESS CORRECT INFORMATION
THIS SHOULD NOT BE THE RESPONSIBILITY OF VOLUNTEERS IN THE COMMUNITY WHO ARE NOT MEDICALLY TRAINED TO EMOTIONALLY SUPPORT PATIENTS - THAT IS THE RESPONSIBILITY OF THE NATIONAL CHARITY & THE DEPARTMENT OF HEALTH
THE NATIONAL CHARITY SHOULD BE ORGANISING AN AWARENESS GATHERING OUTSIDE LEINSTER HOUSE AS A MATTER OF URGENCY SO THAT OUR COMMUNITY CAN GATHER TO DEMAND BETTER FROM OUR NEW GOVERNMENT
THERE IS NO BETTER TIME THAN NOW TO SIGN MY PETITION TO DEMAND OUR ENDOMETRIOSIS FRAMEWORK AND DEMAND A NATIONAL INQUIRY TO INVESTIGATE THE FAILURES TO OUR ENDOMETRIOSIS COMMUNITY