Petition update8th Richest County in the World (IsleofMan) denies life changing Duchenne drug Translarna
Imagine being told your child is seriously ill. Imagine..

Clive HeskethOnchan, Isle of Man

Sep 22, 2016
Imagine being told your child is seriously ill.
Imagine crying until you think there's nothing left.
Imagine feeling like you've been punched in the stomach and wandering the corridors, as if your life was on pause for days on end, not able to comprehend what is happening.
Imagine having to watch as your once active child gets weaker.
Imagine holding your baby through scary tests while they struggle in fright.
Imagine holding your baby countless times while someone sticks needles in them while they scream.
Imagine the guilt of being a carrier and for giving your child this disease all be it unknowingly.
Imagine holding back the tears when your other child fights for your attention and time.
Imagine losing all your independence and identity and just becoming someones Mummy.
Imagine not being to able to make any plans apart from hospital visits.
Imagine learning a whole new vocabulary of words which is all you talk about anymore.
Imagine good friends being too uncomfortable to see you or speak to you anymore.
Imagine the loneliness...
Imagine perfect strangers passing comment about your son
But with the emptiness ...
Imagine the kindness of strangers who don't know you
Imagine the incredible support from people you've never met but know how it feels.
Imagine how special each cuddle is that you feel the need to memorise it.
Imagine the magic of each smile knowing that this smile was lost for weeks and now it's back
Imagine how fragile and precious life feels.
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