Petition update8th Richest County in the World (IsleofMan) denies life changing Duchenne drug Translarna
Finley Hesketh received his award "Highly Commended" in the Spirt of Youth Award

Clive HeskethOnchan, Isle of Man

Sep 20, 2016
Finley Hesketh received his award "Highly Commended" in the Spirt of Youth Award this evening from the Isle of Man Pride of Mann awards, so thank you for voting and putting a smile on our faces after many months of trying to get #Translarna4Finley, everything we do is #4Finley to #EndDuchenne, Finley is the ultimate leader with his Can do attitude I will, We Will despite his muscle wasting disease he is determined and loving.
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