Hello everyone, 

I am so excited to share the news that the charity Anaphylaxis UK has launched a new factsheet about Alpha-gal Syndrome (also called Alpha-gal Allergy). This is a BIG DEAL as, until now, there was very little easy-to-read, accurate and evidence-based information about this condition for people in the UK.

Please take a look and share the factsheet far and wide. The more people who know about this allergy, the easier it will be for sufferers and healthcare providers to identify and manage it. It's considered rare but it's likely underdiagnosed due to a lack of awareness, and we know it's emerging or on the rise in many countries - including the UK. 

This is a fantastic step forward, and my brother and I have been working with Anaphylaxis UK to promote the factsheet as part of our ongoing campaign to improve the diagnosis and treatment of Alpha-gal Syndrome. We're delighted the factsheet includes information about potential allergens in medications and vegan products, as this has been a huge barrier to treatment for my brother. 

You can read the case study from Simon to learn about 'fume reactions' which many Alpha-gal Syndrome sufferers report. For another example of what it's like to live with this condition, check out the latest published account of my brother's story - written in his own words for our local paper. 

Please continue to support our petition so we can get more factual and accessible information to as many people as possible. We're still pushing for the UK Health Security Agency to get Alpha-gal Syndrome added to the NHS website and NICE guidelines, and we can only do this with your support. 

Many thanks and best wishes, 

Lydia x