Help break the CDC's silence concerning their grossly flawed study on Morgellons Disease.

The Issue

For many years now people have struggled with the devastating symptoms of Morgellons disease.  It has become something so controversial and stigmatized that most people isolate and endure the pain alone.  This is a heartbreaking situation where hideous medical neglect and denial of patient rights is allowed, overlooked, and clearly accepted by the medical establishment today.

Since the disease went unrecognized and un-reported for so long, advocates pushed the CDC to do something about this.  Soon their phones were ringing so often about Morgellons that they decided to do a study using 600k of taxpayer money and teamed up with Kaiser who provided patients they had already deemed delusional. 

Many test subjects dropped out and the patients they did study didn't have fibers and it's likely they didn't have Morgellons at all. 

These findings can be accessed via Professor Randy Wymore PhD, whom has studied Morgellons earnestly since 2005 and has written a paper which details everything wrong with the CDC's study. 

He can be reached at  randy.wymore@okstate.edu and these and many other documents can also be found at the Charles E. Holman Foundation website, including links to all of the peer-reviewed research publications. sources:  www.thecehf.org

 

The large community of patients and their families waited 4 years before hearing anything from the CDC, and when they presented their shoddy work, laced with bandwagon bias and a company called Kaiser which is both non and for-profit: which is not allowed in published medical studies. 

Study and research is not supposed to have direct involvement with any outside interests or profit. 

Morgellons is very easy to see if a person will just look; it does not take a doctor, in fact even children can see it, often with the naked eye. 

It's so shocking that even doctors are so easily blinded by their own cognitive dissonance when looking at these strange filaments which are clearly embedded in and growing from the skin.  Even the composition of the blue and black fibers has been proven by outside research which has been done correctly, and the coloring in those filaments is melanin

One oppositional dermatologist, Stephen Feldman MD (North Carolina)  came to a scientific medical conference focused on Morgellons and he agreed to look at a lesion on a patient's back.  He said he rarely uses his 5x dermatoscope and quipped that it's only good for "setting leaves on fire on a hot and sunny day."   

The patient provided the doctor a 60x microscope with lighting.  You can see this scene in the documentary film, Skin Deep: The Battle over Morgellons. 

Dr. Feldman even made the patient bleed while trying to remove a blue fiber that was deeply embedded in her skin lesion. 

You can witness the doctor try to blame it on outside things, like towels...it's from a towel you use.  It's a contaminant." 

But the composition of these blue fibers are ALREADY PUBLISHED too!  It's collagen, keratin, and MELANIN that makes up the dark pigmentation of the fibers/filaments. 

THERE HAS ALSO BEEN INSOLUBLE AMYLOID AND PHOSPHO-TAU proteins detected recently, which is very scary.

When challenged with the information that clothes and textiles are not made out of human proteins like collagen or keratin from fingernails, the shrugs and outright dismissal from those meant to follow the Hippocratic Oath are difficult to fathom. 

It took me a long time. Over 50 doctors before I surrendered and turned my energy to my comrades.

This problem wasn't created by the CDC.  But they are allowing skin doctors to prescribe antipsychotics to people with infectious diseases that they won't even examine nor acknowledge. 

The CDC now fully determines how doctors will handle it and even if a patient brings in a positive lab test, that test is not treated seriously and is dismissed as quickly as the patient. 

This experience extends to and repeated at Children's Hospitals. Some patients have had their children taken away, stripped even of that, and only because they kept asking for help.

This disease brings one loss after another until most patients end up with nothing left.  If the CDC determines how the medical establishment and doctors handle Morgellons Disease, Doctors just assume they are correct and the negligence is deemed to be acceptable. 

If a doctor (who society generally believes) tells a patient with no proper medical exam that they don't have a disease and are "delusional", the family members almost always believe the doctor over anything their loved one says. 

That is when the losses from this horrific disease compound to a point where many souls decide to check out.

We need your help.  We are not seeking funding, we aren't seeking anything with this petition except for your empathy and your voices joined together. 

Your signatures are vital and cherished!  People who are categorized and neglected to this degree and stripped even of their very dignity have an impossible time being heard by the same people who have mislabeled and neglected them.

People with Morgellons and the alternative doctors who do treat it are tired of defending the truth and fighting for their lives at the same time. 

We are tired of begging for help from the very  organization that continues to present their lies even though many studies utilizing molecular science have already been published

Debunking of DOP (delusions of parasitosis) has already been published in medical journals.

Those studies all found borrelia bacteria in every Morgellons patient.   Much more research is needed, but how can that happen if the CDC won't even talk to us. 

We need them to publicly acknowledge this movement and request for them to not only take another look, but to join us in this fight. 

We know that the CDC can't solve or cure the disease.  But we know that the new director and her staff are humans, just like any of us, and they are fully capable of breaking their silence and projected ambivalence. 

There is a lot of power in simple communication and if we join together in humility and respect for one another, we can MAKE CHANGE. 

We are starting from scratch today, backed by wonderful souls who have signed this petition as a measure of support, and we commit to bringing our continued and long-sustained patience and tolerance to the table, along with love, as we embark on this change, together!  

I personally have lost 18 friends to suicide in the from 2015 until now. One doctor whom has treated more patients with Morgellons than anyone in the world has published a book called,

Morgellons: The Legitimization of a disease. Her name is Dr. Ginger Savely, and she has calculated that people with Morgellons are 800% more likely to commit suicide than the normal population.  No, not 80%.  It's 800%.

And yet he CDC remains silent, as if their collective perception is somehow omniscient and unmovable even when they are proven wrong repeatedly by legitimate scientific studies and/or presented with evidence that goes against what they have already decided.

In essence, this is a war against cognitive dissonance at the top.

Please, help us pressure the CDC to break their silence and strike down their outdated and abusive rhetoric surrounding this disease. This Covid pandemic and the CDC messing up the tests for that in 2020 has shown the world one thing:  the CDC is fallible just like the rest of the world. They are not the end all be all. 

In fact, veterinary medical journals have already published studies on dogs with Morgellons;  it also takes a large toll on in the livestock industry, where it is called Bovine Digital Dermatitis.

 To continue to uphold radio silence over a contested study when thousands are crying out for help has made many lose hope in humanity. 

Many children are asking their parents why they are still sick, and why did that doctor call you crazy, Mom or Dad?  It is unfathomable and so difficult to explain, but I decided to try. 

Thank you for reading this.  Please help these families by simply signing this petition.

You CAN help give the power back to the people!  

Thank you so much!

 

avatar of the starter
Katie YussufPetition StarterWriter, Creator, Lover, Morgellons Disease Activist
This petition had 32 supporters

The Issue

For many years now people have struggled with the devastating symptoms of Morgellons disease.  It has become something so controversial and stigmatized that most people isolate and endure the pain alone.  This is a heartbreaking situation where hideous medical neglect and denial of patient rights is allowed, overlooked, and clearly accepted by the medical establishment today.

Since the disease went unrecognized and un-reported for so long, advocates pushed the CDC to do something about this.  Soon their phones were ringing so often about Morgellons that they decided to do a study using 600k of taxpayer money and teamed up with Kaiser who provided patients they had already deemed delusional. 

Many test subjects dropped out and the patients they did study didn't have fibers and it's likely they didn't have Morgellons at all. 

These findings can be accessed via Professor Randy Wymore PhD, whom has studied Morgellons earnestly since 2005 and has written a paper which details everything wrong with the CDC's study. 

He can be reached at  randy.wymore@okstate.edu and these and many other documents can also be found at the Charles E. Holman Foundation website, including links to all of the peer-reviewed research publications. sources:  www.thecehf.org

 

The large community of patients and their families waited 4 years before hearing anything from the CDC, and when they presented their shoddy work, laced with bandwagon bias and a company called Kaiser which is both non and for-profit: which is not allowed in published medical studies. 

Study and research is not supposed to have direct involvement with any outside interests or profit. 

Morgellons is very easy to see if a person will just look; it does not take a doctor, in fact even children can see it, often with the naked eye. 

It's so shocking that even doctors are so easily blinded by their own cognitive dissonance when looking at these strange filaments which are clearly embedded in and growing from the skin.  Even the composition of the blue and black fibers has been proven by outside research which has been done correctly, and the coloring in those filaments is melanin

One oppositional dermatologist, Stephen Feldman MD (North Carolina)  came to a scientific medical conference focused on Morgellons and he agreed to look at a lesion on a patient's back.  He said he rarely uses his 5x dermatoscope and quipped that it's only good for "setting leaves on fire on a hot and sunny day."   

The patient provided the doctor a 60x microscope with lighting.  You can see this scene in the documentary film, Skin Deep: The Battle over Morgellons. 

Dr. Feldman even made the patient bleed while trying to remove a blue fiber that was deeply embedded in her skin lesion. 

You can witness the doctor try to blame it on outside things, like towels...it's from a towel you use.  It's a contaminant." 

But the composition of these blue fibers are ALREADY PUBLISHED too!  It's collagen, keratin, and MELANIN that makes up the dark pigmentation of the fibers/filaments. 

THERE HAS ALSO BEEN INSOLUBLE AMYLOID AND PHOSPHO-TAU proteins detected recently, which is very scary.

When challenged with the information that clothes and textiles are not made out of human proteins like collagen or keratin from fingernails, the shrugs and outright dismissal from those meant to follow the Hippocratic Oath are difficult to fathom. 

It took me a long time. Over 50 doctors before I surrendered and turned my energy to my comrades.

This problem wasn't created by the CDC.  But they are allowing skin doctors to prescribe antipsychotics to people with infectious diseases that they won't even examine nor acknowledge. 

The CDC now fully determines how doctors will handle it and even if a patient brings in a positive lab test, that test is not treated seriously and is dismissed as quickly as the patient. 

This experience extends to and repeated at Children's Hospitals. Some patients have had their children taken away, stripped even of that, and only because they kept asking for help.

This disease brings one loss after another until most patients end up with nothing left.  If the CDC determines how the medical establishment and doctors handle Morgellons Disease, Doctors just assume they are correct and the negligence is deemed to be acceptable. 

If a doctor (who society generally believes) tells a patient with no proper medical exam that they don't have a disease and are "delusional", the family members almost always believe the doctor over anything their loved one says. 

That is when the losses from this horrific disease compound to a point where many souls decide to check out.

We need your help.  We are not seeking funding, we aren't seeking anything with this petition except for your empathy and your voices joined together. 

Your signatures are vital and cherished!  People who are categorized and neglected to this degree and stripped even of their very dignity have an impossible time being heard by the same people who have mislabeled and neglected them.

People with Morgellons and the alternative doctors who do treat it are tired of defending the truth and fighting for their lives at the same time. 

We are tired of begging for help from the very  organization that continues to present their lies even though many studies utilizing molecular science have already been published

Debunking of DOP (delusions of parasitosis) has already been published in medical journals.

Those studies all found borrelia bacteria in every Morgellons patient.   Much more research is needed, but how can that happen if the CDC won't even talk to us. 

We need them to publicly acknowledge this movement and request for them to not only take another look, but to join us in this fight. 

We know that the CDC can't solve or cure the disease.  But we know that the new director and her staff are humans, just like any of us, and they are fully capable of breaking their silence and projected ambivalence. 

There is a lot of power in simple communication and if we join together in humility and respect for one another, we can MAKE CHANGE. 

We are starting from scratch today, backed by wonderful souls who have signed this petition as a measure of support, and we commit to bringing our continued and long-sustained patience and tolerance to the table, along with love, as we embark on this change, together!  

I personally have lost 18 friends to suicide in the from 2015 until now. One doctor whom has treated more patients with Morgellons than anyone in the world has published a book called,

Morgellons: The Legitimization of a disease. Her name is Dr. Ginger Savely, and she has calculated that people with Morgellons are 800% more likely to commit suicide than the normal population.  No, not 80%.  It's 800%.

And yet he CDC remains silent, as if their collective perception is somehow omniscient and unmovable even when they are proven wrong repeatedly by legitimate scientific studies and/or presented with evidence that goes against what they have already decided.

In essence, this is a war against cognitive dissonance at the top.

Please, help us pressure the CDC to break their silence and strike down their outdated and abusive rhetoric surrounding this disease. This Covid pandemic and the CDC messing up the tests for that in 2020 has shown the world one thing:  the CDC is fallible just like the rest of the world. They are not the end all be all. 

In fact, veterinary medical journals have already published studies on dogs with Morgellons;  it also takes a large toll on in the livestock industry, where it is called Bovine Digital Dermatitis.

 To continue to uphold radio silence over a contested study when thousands are crying out for help has made many lose hope in humanity. 

Many children are asking their parents why they are still sick, and why did that doctor call you crazy, Mom or Dad?  It is unfathomable and so difficult to explain, but I decided to try. 

Thank you for reading this.  Please help these families by simply signing this petition.

You CAN help give the power back to the people!  

Thank you so much!

 

avatar of the starter
Katie YussufPetition StarterWriter, Creator, Lover, Morgellons Disease Activist

The Decision Makers

Former State House of Representatives
26 Members
Timm Ormsby
Former State House of Representatives - Washington-3B
Eileen Cody
Former State House of Representatives - Washington-34A
Roger Goodman
Former State House of Representatives - Washington-45A
Gregory Abbott
Texas Governor
Jay Inslee
Former Washington Governor
Ron DeSantis
Florida Governor
Joseph R. Biden
Former President of the United States

Petition Updates