Government aid required for Wilson's disease Patients in India
Government aid required for Wilson's disease Patients in India
The Issue
Wilson disease is a disease of copper metabolism affecting liver and Brain. There are at least 300, 000 patients (and this number is increasing ) of this disease in India. Patients of Wilson's disease are on treatment with a drug called D Penicillamine. This is a life saving drug and requires to be taken for life by most patients regularly and is their life line.
This drug has been in short supply for last 3 months and the existing stock in India is likely to get over within next 2 weeks. Importing this expensive drug is not possible for most of the patients. This is likely to cause deaths and worsening of the liver and brain conditions of these patients.
What is the reason for this real or artifical shortage? This drug's price has been fixed by drug price controller at Rs 138 per strip of 10 capsules. This molecule is not manufactured in India and it is imported, then capsulised and then sold by few pharmacy companies like VHB LIFESCIENCES, SAMARTH PHARMA, CHANDRA BHAGAT PHARMA . Due to non availability of Raw material and higher cost due to duties, etc, It is no longer cost effective for them to import and sell this medicine. Probably this is the reason for the shortage. Government of India might have taken the decision in interest of the patients, however it has become counterproductive. DPCO should have kept the price, which would have not caused the pharmaceutical companies to go in losses. This would have helped.
Another option was to encourage manufacturing of this molecule in India. Until this happens, it would not be possible to solve this problem. Till that time, we request Indian Government to please make sure availability of this drug at economic cost to us.
We as a community of Wilson's disease patients and citizens of this country seek Our Indian Government's help to save our lives. Please intervene and make the drug available for us.
Please sign this and forward it to as many people as you can and as the time is running out for us. PLEASE HELP US.
SHARE THIS TO AS MANY PEOPLE AS YOU CAN TO GET A QUICK REAPONSE ON THIS PETITION.
Thanks

The Issue
Wilson disease is a disease of copper metabolism affecting liver and Brain. There are at least 300, 000 patients (and this number is increasing ) of this disease in India. Patients of Wilson's disease are on treatment with a drug called D Penicillamine. This is a life saving drug and requires to be taken for life by most patients regularly and is their life line.
This drug has been in short supply for last 3 months and the existing stock in India is likely to get over within next 2 weeks. Importing this expensive drug is not possible for most of the patients. This is likely to cause deaths and worsening of the liver and brain conditions of these patients.
What is the reason for this real or artifical shortage? This drug's price has been fixed by drug price controller at Rs 138 per strip of 10 capsules. This molecule is not manufactured in India and it is imported, then capsulised and then sold by few pharmacy companies like VHB LIFESCIENCES, SAMARTH PHARMA, CHANDRA BHAGAT PHARMA . Due to non availability of Raw material and higher cost due to duties, etc, It is no longer cost effective for them to import and sell this medicine. Probably this is the reason for the shortage. Government of India might have taken the decision in interest of the patients, however it has become counterproductive. DPCO should have kept the price, which would have not caused the pharmaceutical companies to go in losses. This would have helped.
Another option was to encourage manufacturing of this molecule in India. Until this happens, it would not be possible to solve this problem. Till that time, we request Indian Government to please make sure availability of this drug at economic cost to us.
We as a community of Wilson's disease patients and citizens of this country seek Our Indian Government's help to save our lives. Please intervene and make the drug available for us.
Please sign this and forward it to as many people as you can and as the time is running out for us. PLEASE HELP US.
SHARE THIS TO AS MANY PEOPLE AS YOU CAN TO GET A QUICK REAPONSE ON THIS PETITION.
Thanks

Petition Closed
Share this petition
The Decision Makers
Petition Updates
Share this petition
Petition created on 16 September 2016