Offer R-CPD Treatment in Canada

Recent signers:
Teresa Prokopanko and 19 others have signed recently.

The Issue

Retrograde Cricopharyngeus Dysfunction (R-CPD) is a condition where the cricopharygneus muscle located at the bottom of the throat doesn’t relax to allow gas to pass upwards- preventing the burping response. Treatment of this condition involves botox injections into the cricopharyngeus muscle which costs a lot for Canadians as only two physicians offer the treatment, one in the UK and one in the US. Thousands of people live with this condition but are unaware that there is such a condition, due to it not being recognised by GPs and medical professions. They instead live their daily lives in pain and discomfort, misdiagnosed with IBS or GERD. I myself live with this condition but was told by GPs that it was nothing to be concerned about. After doing plenty of research online, I found many individuals across the globe suffer from this condition just as I have for my entire life, many of which use the term no-burp or no-burpers.  I am hoping that this petition can help to spread awareness of R-CPD as the more awareness there is about it, the more people will speak up, including sufferers of the condition. The more people speak up about it, the more common it will be. This hopefully will lead to more recognition and then correct diagnoses from GP’s and other professions. This ultimately should enhance the chance of the botox treatment being made available in Canada and covered by MSI, for sufferers of this condition and they will no longer be living in pain and discomfort.
Sign this petition to help make this dream of treatment for myself and many others who suffer from R-CPD a reality. 
 
 

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Recent signers:
Teresa Prokopanko and 19 others have signed recently.

The Issue

Retrograde Cricopharyngeus Dysfunction (R-CPD) is a condition where the cricopharygneus muscle located at the bottom of the throat doesn’t relax to allow gas to pass upwards- preventing the burping response. Treatment of this condition involves botox injections into the cricopharyngeus muscle which costs a lot for Canadians as only two physicians offer the treatment, one in the UK and one in the US. Thousands of people live with this condition but are unaware that there is such a condition, due to it not being recognised by GPs and medical professions. They instead live their daily lives in pain and discomfort, misdiagnosed with IBS or GERD. I myself live with this condition but was told by GPs that it was nothing to be concerned about. After doing plenty of research online, I found many individuals across the globe suffer from this condition just as I have for my entire life, many of which use the term no-burp or no-burpers.  I am hoping that this petition can help to spread awareness of R-CPD as the more awareness there is about it, the more people will speak up, including sufferers of the condition. The more people speak up about it, the more common it will be. This hopefully will lead to more recognition and then correct diagnoses from GP’s and other professions. This ultimately should enhance the chance of the botox treatment being made available in Canada and covered by MSI, for sufferers of this condition and they will no longer be living in pain and discomfort.
Sign this petition to help make this dream of treatment for myself and many others who suffer from R-CPD a reality. 
 
 

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Petition created on July 25, 2021