Our lives may be changed .We have limited life span and soon may die of respiratory failure .The drug Utrophin  may improve our respiration to start with and we atleast be able to breath and who knows may be able to use our hands.

If the trial is not done on us we are surely to die of respiratory failure.

Every passing day we are nearing our death.If trial is done on us it may give us a chance to live.

Please help us convince the executive management to start a trial on adults like us ,this is the only chance for us to survive