Petition update

Important Development: Dáil schedule for Thursday, 4th of April 2019

Blessing Dada
Dublin, Ireland

Mar 30, 2019 — 

After emailing my local TD's, one of them, on my behalf (Clare Daly) has been active on her side of things, submitting questions on my behalf to the Minister for Health and the responses she got for my records.

She asked the Minister for Health the reason fibromyalgia is excluded from the long term illness list in view of the fact it is a long-term and debilitating illness; and when it will be placed on the list. The answer we got were:

"The LTI Scheme was established under Section 59(3) of the Health Act 1970 (as amended). The conditions covered by the LTI are: acute leukaemia; mental handicap; cerebral palsy; mental illness (in a person under 16); cystic fibrosis; multiple sclerosis; diabetes insipidus; muscular dystrophies; diabetes mellitus; parkinsonism; epilepsy; phenylketonuria; haemophilia; spina bifida; hydrocephalus; and conditions arising from the use of thalidomide.

Under the LTI Scheme, patients receive drugs, medicines, and medical and surgical appliances directly related to the treatment of their illness, free of charge. 

There are no plans to extend the list of conditions covered by the Scheme at this time. However, I wish to inform the Deputy that it is proposed that the LTI Scheme would be included as part of a review of the basis for existing hospital and medication charges, to be carried out under commitments given in the Sláintecare Implementation Strategy."

She also asked the Minister for Health the steps he will take to ensure fibromyalgia is classified as a disability. And basically the answer we got was: Fibromyalgia is not classified as a disability and there are currently no plans for the reclassification of fibromyalgia.

As sufferers and very supportive allies, note that they did not give a specific reason why and we need to push for that.Lets not give up! This will take a lot of time and effort. So with that.......

We are up on Dáil schedule for next Thursday, 4th of April at 2.45pm!

Now, there are 3 ways this can pan out as many things can change at the last minute in politics.

1. Government business 1 goes on for longer than expected and statements on fibro starts later than 2.45pm.

2. Government business 1 goes on for too long and statements on fibro gets rescheduled for another day.

3. Statements on fibro gets heard on time.

Just to clarify what statements on fibro means. Each political party gets 10 mins to speak on the topic of fibro. It is only politicians speaking. This is why it’s very important that you write to your TD and express what you want from this, especially as it is vitally important now, running up to next week. You can find your local TD's here:

https://www.whoismytd.com/

There are about 100 public spaces in the public gallery but you are only allowed watch proceedings.

You can also watch proceedings on Oireachtas TV:

https://www.oireachtas.ie/en/oireachtas-tv/oireachtas-tv-channel/?fbclid=IwAR3Yq_vzUpTeST2sxGzqG8ZyW81A4p_wWi6GTzbiqj_aX-twlvz82j28Fl0

~Don't judge a disability by its visibility~


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