Thanks Former Member of Parliament Shri G.V. Harsha Kumar for supporting #SMAScreening Campaign

Former Member of Parliament Shri G.V. Harsha Kumar extended his support to Change.org India  petition https://change.org/SMAScreening and helped to take this important issue to the attention of the Government of Andhra Pradesh.

Harsha Kumar urges the Government of Andhra Pradesh to formulate a policy for early screening and diagnosis of Spinal Muscular Atrophy (SMA) so that affected children can be identified at the earliest possible stage and receive timely treatment.

On 14 March 2026, Shri G.V. Harsha Kumar addressed a press conference in Rajahmundry, where he urged the Government of Andhra Pradesh to take immediate note of the difficulties faced by children suffering from SMA and to formulate a comprehensive State policy to ensure early diagnosis, treatment, and support for affected children and their families.

Press Conference:
https://www.facebook.com/reel/3537857239688520/

Earlier, in October 2024, a grievance regarding this issue was submitted to Shri Nara Lokesh during the Praja Darbar program. The grievance was forwarded to the Director of Medical Education, Andhra Pradesh, for further action. However, the matter was subsequently closed without any concrete or meaningful resolution.

When a request was made in July 2026 to reconsider the grievance, the authorities clarified that the Government of Andhra Pradesh is in the process of formulating a comprehensive policy to support patients suffering from rare diseases. 

Thanks G.V Harsha Kumar for your support.

We thank Government of Andhra Pradesh for formulating a comprehensive policy to support patients suffering from Spinal Muscular Atrophy (SMA) and other rare diseases.

@PkGollamudi