Eli Lilly, Advance Mission to Support Debilitating Brain Disease With Proven Medication


Eli Lilly, Advance Mission to Support Debilitating Brain Disease With Proven Medication
The Issue
Please Note: if you'd like to donate to our cause, do so at agsaa.org/donate. Change_org does not share funds when you give to the petition.
Eli Lilly & Co, treatment with your JAK inhibitor baricitinib has proven to be a life saving and altering treatment for children and adults living with the debilitating neuroinflammatory brain disease Aicardi-Goutieres Syndrome (AGS). For reasons unknown, our community has waited without update for you to continue advocating for approval with the FDA. In the interim, AGS families around the world have struggled with cost and access issues despite compelling testimonials, published evidence of safety and efficacy, and the support and advocacy of the American College of Rheumatology (ACR) and European Alliance of Associations for Rheumatology (EULAR).
Engage in dialogue and partner with the community and patient advocacy group, the AGSAA.
Provide cost assistance to AGS families.
Advocate for approval with the FDA.

4,504
The Issue
Please Note: if you'd like to donate to our cause, do so at agsaa.org/donate. Change_org does not share funds when you give to the petition.
Eli Lilly & Co, treatment with your JAK inhibitor baricitinib has proven to be a life saving and altering treatment for children and adults living with the debilitating neuroinflammatory brain disease Aicardi-Goutieres Syndrome (AGS). For reasons unknown, our community has waited without update for you to continue advocating for approval with the FDA. In the interim, AGS families around the world have struggled with cost and access issues despite compelling testimonials, published evidence of safety and efficacy, and the support and advocacy of the American College of Rheumatology (ACR) and European Alliance of Associations for Rheumatology (EULAR).
Engage in dialogue and partner with the community and patient advocacy group, the AGSAA.
Provide cost assistance to AGS families.
Advocate for approval with the FDA.

4,504
The Decision Makers

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Petition created on August 15, 2022