Eli Lilly, Advance Mission to Support Debilitating Brain Disease With Proven Medication

The Issue

Please Note: if you'd like to donate to our cause, do so at agsaa.org/donate. Change_org does not share funds when you give to the petition.

Eli Lilly & Co, treatment with your JAK inhibitor baricitinib has proven to be a life saving and altering treatment for children and adults living with the debilitating neuroinflammatory brain disease Aicardi-Goutieres Syndrome (AGS). For reasons unknown, our community has waited without update for you to continue advocating for approval with the FDA. In the interim, AGS families around the world have struggled with cost and access issues despite compelling testimonials, published evidence of safety and efficacy, and the support and advocacy of the American College of Rheumatology (ACR) and European Alliance of Associations for Rheumatology (EULAR).

Honor your mission.

Engage in dialogue and partner with the community and patient advocacy group, the AGSAA.

Provide cost assistance to AGS families.

Advocate for approval with the FDA.

Read more at agsaa.org/jak-inhibition.

Donate at agsaa.org/donate.

avatar of the starter
Patrick WintersPetition StarterResearch Director @ AGSAA agsaa.org

4,504

The Issue

Please Note: if you'd like to donate to our cause, do so at agsaa.org/donate. Change_org does not share funds when you give to the petition.

Eli Lilly & Co, treatment with your JAK inhibitor baricitinib has proven to be a life saving and altering treatment for children and adults living with the debilitating neuroinflammatory brain disease Aicardi-Goutieres Syndrome (AGS). For reasons unknown, our community has waited without update for you to continue advocating for approval with the FDA. In the interim, AGS families around the world have struggled with cost and access issues despite compelling testimonials, published evidence of safety and efficacy, and the support and advocacy of the American College of Rheumatology (ACR) and European Alliance of Associations for Rheumatology (EULAR).

Honor your mission.

Engage in dialogue and partner with the community and patient advocacy group, the AGSAA.

Provide cost assistance to AGS families.

Advocate for approval with the FDA.

Read more at agsaa.org/jak-inhibition.

Donate at agsaa.org/donate.

avatar of the starter
Patrick WintersPetition StarterResearch Director @ AGSAA agsaa.org

The Decision Makers

Patrik Jonsson
Patrik Jonsson
Lilly senior vice president, president of Lilly Immunology and Lilly USA, and chief
Janet Woodcock, M.D.
FDA Director, Center for Drug Evaluation & Research
Patrizia Cavazzoni
Patrizia Cavazzoni
FDA Director of the Center for Drug Evaluation and Research
Daniel Skovronsky
Daniel Skovronsky
President of Lilly Research Labs and Senior Vice President of Science and Technology
Kathryn Beiser
Kathryn Beiser
Lilly Vice President Global Communications

Petition Updates