Define "Melvin Ramsay's Myalgic Encephalomyelitis (M.E.)" as own distinct disease from CFS

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I believe that "Melvin Ramsay's "Epidemic" Myalgic Encephalomyelitis (M.E.) - Atypical Poliomyelitis" should be it's own distinct disease category; which is separate from "Chronic Fatigue Syndrome". 

ACUTE DISSEMINATED ENCEPHALOMYELITIS - POST-INFECTIOUS & POST-VACCINATION "INFLAMMATORY" ENCEPHALOMYELITIS

Post-Infectious "Inflammatory" Encephalomyelitis has been linked to Enteroviruses and particularly Coxsackie B, Epstein Barr Virus, Cytomegalovirus, Human Herpes Virus 6, Varicella Zoster Virus, Influenza, Adenovirus, Measles, Mumps, Rubella, Borrelia and Mycoplasma in the medical literature; which have all been connected to the terms Myalgic Encephalomyelitis within the UK and Chronic Fatigue Syndrome within the US; which has erroneously made these two terms synonymous with each other. 

Post-Vaccination "Inflammatory" Encephalomyelitis is linked with Vaccine Injury.

Myalgic Encephalomyelitis is the "neuroimmune" and "inflammatory" neurological disease; which comes after Enteroviral "Brainstem" Rhombencephalitis and Encephalomyelitis.

ENTEROVIRUS ENCEPHALITIS - Encephalitis Society

Chronic Fatigue Syndrome is a group of "missed diagnosed" illnesses; which may pass the London, Oxford, Fukuda, Canadian Consensus Criteria (CCC), International Consensus Criteria (ICC), Reeves Criteria and Systemic Exertion Intolerance Disease (SEID) criteria's.

The International Consensus Criteria is merely a diagnosis of a "probable" "neuroimmune" disease not an explicit diagnosis of Myalgic Encephalomyelitis.

Why separate Chronic Fatigue Syndrome (CFS) from the term (ME/CFS)? (Video) - Dr. Byron Hyde

"This Chronic Fatigue Syndrome name trivialised this illness so profoundly. It is hardly the right name for the illness" (Video) - Nancy Klimas

A HISTORY OF PSYCHIATRY MISLEADING THE PUBLIC ABOUT M.E.

Dr. Colin McEvedy and fellow psychiatrist Dr. William Beard (Video) - Dr. Byron Hyde

Oxford Criteria - ME Pedia

CHRONIC FATIGUE SYNDROME - Oxford Definition

A report--chronic fatigue syndrome: guidelines for research.

"Fatigue is the principal symptom: it is severe, disabling and affects physical and mental functioning; it should have been present for a minimum of 6 months during which it was present for more than 50% of the time."

"Other symptoms may be present: particularly myalgia, mood swings and sleep disturbances."

"Definite onset of symptoms, not life-long."

"Exclusions: patients with established medical conditions known to produce chronic fatigue; also patients with a current diagnosis of schizophrenia, bipolar disorder (manic depressive illness), substance abuse, eating disorder or proven organic brain disease."

THERE IS A PROVEN ORGANIC BRAIN DISEASE IN MYALGIC ENCEPHALOMYELITIS; WHICH DISQUALIFIES M.E. FROM THE OXFORD CRITERIA AND IT CAN BE LIFELONG IN CASES.

"I do agree that this terminology is unclear. It is what official bodies in the UK offer use. I apologise and agree that CFS and ME should be kept separate" - Michael Sharpe (25/04/2018), 06:41 (tweet from twitter)

What is Chronic Fatigue Syndrome & Myalgic Encephalomyelitis ? (Video) - Professor Michael Sharpe

Michael Sharpe on the inclusion criteria for The Pace Trial.

"That is right all participants met criteria for CFS and a subset also for (one set of) criteria for ME. All had to have fatigue as the principle complaint. I hope clear in the paper" - Michael Sharpe (the following tweet from twitter after the one above)

Michael Sharpe admitting that people who qualified for a Chronic Fatigue Syndrome by the Oxford criteria were mixed up with people with Myalgic Encephalomyelitis (M.E.) on twitter.

Epidemic Myalgic Encephalomyelitis - ME Pedia

List of Myalgic Encephalomyelitis and Chronic Fatigue Syndrome outbreaks - ME Pedia

The viruses linked to the "epidemics" are enteroviruses. Myalgic Encephalomyelitis is an outcome of an enteroviral infection under a compromised or ineffective immune response; leading to a secondary viremia which can lead onto a persistent non-cytolytic infection within the host.

Non-Cytolytic Enterovirus - ME Pedia

"They would have excluded some of the epidemic cases yes, and rightly so. Whatever those epidemics where, they were not what we have all being calling CFS/ME for many years See section 12 of a chapter I wrote a quarter of a century ago. Still apposite" - Simon Wessely (01/05/209), 10:01 (tweet from twitter)

Simon Wessely admitting that ME is not what they have been calling CFS/ME for all of these years.

"Dr. Wessely's work was mentioned. He has expressed his dissatisfaction with the guidelines and has written to the board to this effect. It was claimed that the DSS has misrepresented his work. He had included people with Chronic Fatigue Syndromes. There were other causes of this which people had recovered with exercise, whereas ME was made worse by exercise. The board had replied to Dr. Wessely and a copy of their reply was supplied to the ME representatives at the meeting" - from a Freedom Of Information (FOI) Request released Letter from 1992

Morbidity Tables on M.E. may cause panic (Video) - Llewellyn King & Dr. John Chia

Simon Wessely knows that "enteroviruses" were being thrown about as the triggering factor of Myalgic Encephalomyelitis in the late 80's as shown in the papers below.

VP-1 ANTIGEN IN CHRONIC POSTVIRAL FATIGUE SYNDROME (May, 1989) - Simon Wessely

Myalgic Encephalomyelitis - a warning: discussion paper. (April, 1989) - Simon Wessely

Simon Wessely in this paper is trying to muddy the waters by connecting ME with affective disorders (Depression) as well as trying to introduce the idea of relabeling Myalgic Encephalomyelitis as Chronic Fatigue Syndrome even though in the 1992 FOI request letter quote above he is clearly saying that these are separate conditions.

Simon Wessely has given two talks for UNUM the insurance company. One was in London in 1995 and was about ME & CFS, the other was in 2007. This is a clear conflict of interest.

What is ME? Acheson described a different illness to CFS/ME. ME is not CFS or ME/CFS (Video) - Peter White

Peter White tries to justify deceiving patients into believing that they have CFS or CFS/ME knowing that ME is a very different illness; with the blind faith that it might improve recovery times from the illness even though he's admitting its considered incurable.

This fraud by misrepresentation is still going on with labeling Myalgic Encephalomyelitis (M.E.) as Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and breaks the Fraud Act of 2006.

What is Fraud by False Representation? - Delta Net International

How M.E has historically been portrayed as within conventional medicine and by governments around the world as a result of psychiatry's influence ? 

Hysteria, Somatization and Depression (Video) - Dr. Byron Hyde

WHAT IT ACTUALLY IS... 

What is Myalgic Encephalomyelitis (M.E.) ? Answer: Missed Polio (Atypical Poliomyelitis) (Video) - Dr. Byron Hyde

Myalgic Encephalomyelitis (M.E.) is a chronic, inflammatory, physically and neurologically disabling immune mediated disease that presents with symptoms involving multiple bodily systems. It is frequently triggered by a viral infection or as in the case of the Incline Village outbreak a flu-like illness, it affects the central nervous system (CNS), autonomic nervous system (ANS), immune system, cardiovascular system, endocrine system, digestive system, and (neuro) musculoskeletal system.

What is M.E.? (Video) - Dr. Byron Hyde

There is no difference between Polio and M.E. (M.E. is polio with a different name) (Video) - Dr. Byron Hyde

What causes Myalgic Encephalomyelitis (M.E.) ? Persistent Enteroviral Infections (Video) - Dr. John Chia

What is M.E.? M.E. is a diffuse Brain Injury with glucocorticoid receptor resistance (Video) - Dr. Byron Hyde

Enteroviruses: Coxsackievirus/Echovirus are the cause of Myalgic Encephalomyelitis (Video) - Dr Byron Hyde

"Melvin Ramsay's "Epidemic" Myalgic Encephalomyelitis (M.E.) - Atypical Poliomyelitis)" is caused by an "enteroviral" infection of central nervous system; which can lead to Aseptic Meningitis, Encephalitis or Meningoencephalitis, Brainstem Encephalitis, Encephalomyelitis, Hypothalamic Dysfunction, Autonomic Nervous System Disorder or Postural Orthostatic Tachycardia Syndrome (PoTS) as well as a host of other outcomes. 

Including...

Canker Sores, Mouth Ulcers, Facial Rash around Mouth & Nose, Bornholm Disease, Myocarditis, Pericarditis, Enteric Hepatitis, Acute Flaccid Myelitis, Spastic Paraplegia, Whiplash, Fibromyalgia, Trapezius Myalgia, Infectious Myositis, Post-Infectious Reactive Myositis, Small-Fiber Peripheral Neuropathy, Paresthesia, Raynard's

When ever you find a virus, it must fit the disease? (Video) - Dr. John Chia

"It should be noted that ME/CFS symptoms are comparable to those of "Post-Poliomyelitis Syndrome" (Bruno et al 1995) and that viral injury to excitable tissues, such as muscle and nerve, has the potential to alter their crucial metabolic functions. These metabolic functions include ion channel transport, mitochondrial function (Mitochondrial Encephalopathy & Myopathy) and the response to circulating neurotransmitters and neuro-hormones (Hypothalamic Hypopituitary) - the alterations are capable of persisting well after apparent recovery from a precipitating infection (Oldstone 1989)."(Taken from 5.1 Role of infection in ME/CFS/PVFS - An Exploration of the key clinical issues (2019 Edition) by Dr. Charles Shepherd & Dr. Abhijit Chaudhuri)

Comparing a stroke victim to an acute onset M.E. patient (Video) - Dr. Byron Hyde

Different types of Poliomyelitis - Spinal, Bulbar, Landry (now Guillain-Barre Syndrome) and Medin (now Myalgic Encephalomyelitis) (Video) - Dr. Byron Hyde

WHERE DID THE FIRST NOTABLE OUTBREAK START? 

Started with an immunization plus an infection resembling Poliomyelitis at Los Angeles County Hospital, California, USA in 1934 (Video) - Dr. Byron Hyde

AND HERE'S A MORE RECENT OUTBREAK

Enterovirus A71 Infection and Neurologic Disease, Madrid, Spain, 2016 - CDC website

DONALD ACHESON COINED THE TERM BENIGN MYALGIC ENCEPHALOMYELITIS TO DESCRIBE THE ROYAL FREE EPIDEMIC IN THIS 1957 LANCET EDITORIAL - Donald Acheson

The clinical syndrome variously called Benign Myalgic Encephalomyelitis, Iceland Disease and Epidemic Neuromyasthenia - Donald Acheson

1955 Royal Free Hospital outbreak - ME Pedia

The Royal Free Hospital outbreak was a cluster outbreak of Myalgic Encephalomyelitis at the Royal Free Hospital in London. Between July and November, 1955 292 members of the medical, nursing, auxiliary medical, ancillary, and administrative staff fell ill, of which 255 were admitted to the hospital.

An Outbreak of Encephalomyelitis in the Royal Free Hospital, London, in 1955

The beneath symptoms suggest that it was an ENTEROVIRUS outbreak but no pathogen was found.

Severe Headache, Malaise, Lassitude, Vertigo, Pain in limbs, Nausea, Dizziness, Neck stiffness, Neck Pain, Pain in Back, Myalgia, Muscle Weakness, Cramps, Twitching, Depression, Abdominal pain, Vomiting, Diplopia, Tinnitus, Diarrhea
Swollen Lymph Nodes, Paraesthesia

'Epidemic Neuromyasthenia' 1955-1978 - Melvin Ramsay

"Evidence of involvement of the sympathetic nervous system (Autonomic Nervous System Dysfunction and Adrenal Dysfunction) or actual hypothalamic damage (Hypothalamic Dysfunction) was to be found in most cases. This often took the form of orthostatic tachycardia (Postural Orthostatic Tachycardia Syndrome (PoTS)) (which Leon-Sotomayor (1969) states does not occur in cases of hysteria), chilliness of the extremities with increased sensitivity to cold (Hypothyroidism/Low T3 Syndrome), circulatory impairment (Raynaud's or Hyper-coagulation) and hypothermia."

"Assessment, referral and management of Adrenal Dysfunction" - Nice Guideline Development

WHAT M.E. USE TO BE CALLED IN THE PAST ? (Answer: SUPERIOR POLIO: MEDIN TYPE & NEURASTHENIA)

Ivar Wickman and 10 types of Polio from 1905 Epidemic (Video) - Dr. Byron Hyde

Wiliam Osler's 1914 Description of Neurasthenia (Video) - Dr. Byron Hyde

How did the patient get sick ? What type of Flu-like Illness ? What symptoms did they have ? (Video) - Dr. John Chia

SYMPTOMS AND SIGNS OF AN ENTEROVIRUS INFECTION - Enterovirus Foundation

ONSET SYMPTOMS

an upper respiratory track infection, which may include "rhinosinusitis", a "sore throat", (laryngitis), (pharyngitis) or (tonsillitis - Viral Replication) or (herpangina), "croup" (breathing difficulty and harsh cough), blisters or ulcers may develop on roof of mouth, cheeks or on tongue  - Cold/Flu-like Onset

or a lower respiratory track infection like (bronchitis or bronchiolitis) so a persistent "cough"; (pneumonia), (pleurisy) or (pulmonary edema) - Respiratory-like Onset

and/or

gastrointestinal disturbances including (gastroenteritis) and "nausea" and/or "vomiting" and "diarrhea" and "abdominal pain" including (gastritis) and (enterocolitis "Peyer Patches" - Viral Replication) - Gastroenteritis Onset

and

"acute vertigo" and "ataxia"

Accompanied by a "fever", "hyperhidrosis - excessive sweating", severe "headache", "myalgia - muscle pain" and "malaise & fatigue" and leading to "rhombencephalitis", "post-infectious encephalomyelitis" and "tinnitus: pulsatile, tonal, neurological".

leading onto "sympathetic nervous system dominance" and "tertiary adrenal insufficiency", "insomnia""hypersomnia" and "sleep reversal" and "weight loss" then "headaches", a "stiff neck - whiplash, neck pain and crepitus", "post-infectious encephalitis, and neuroinflammation - hypersensitive primed microglia and oxidative stress" (brain fog), "myelitis", "lower back pain", "syncope post exertion crashes""post-infectious myositis", "arthralgia", "arthritis", "myalgia", "muscle stiffness", "muscle weakness", "spastic paraplegia" and "flu-like muscle fatigue after exertion": 2020 NICE guidelines call this "profound malaise".

Syncope Post-Exertion Crashes and Fear of Approaching Death (Impending Doom) (Video) - Dr. Byron Hyde

Spots or Rashes may or may not develop around the mouth. Exanthems of the extremities may appear in red spots, which develop into blisters, on either the hands or the feet in some cases but not in others.

Sensitivities to light known as Photophobia, to sound known as Hyperacusis or Misophonia, and to touch known as Allodynia may develop in some but not in others.

"Since the disease is so very protean in its manifestations it may masquerade as influenza, respiratory catarrh, tonsillitis, gastroenteritis, rheumatism or as some transient virus infection" - Melvin Ramsay ("Infectious Diseases" 1967 book, page 142)

Fibromyalgia, Dysautonomia's including PoTS and Mast Cell Activation Syndrome tend to be common comorbidities as well as Irritable Bowel Syndrome, Enterocolitis, Eosinophilic Colitis, Gasteroparisis, Dysmotility, Paralytic Ileus or Elhers Danlos Syndromes.

Professor Rona Moss-Morris saying that Upper Respiratory Track Infections do not appear to be risk factors (Really???) (Video)

The core symptoms of M.E. in 1905 (Video) - Dr. Byron Hyde

Enteroviruses a causative factor of M.E. (Recovered Viruses from Outbreaks) (Video) Dr. Byron Hyde

Evidence supports presence of encephalitis - Dr. Charles Shepherd (1995)

Myalgic Encephalomyelitis - a persistent enteroviral infection? (420 Patients) - Dowsett, Ramsay,  McCartney & Bell (1990)

Dowsett, Ramsay & Bell on Myalgic Encephalomyelitis (Video) - Dr. Byron Hyde

Myalgic Encephalomyelitis is a neurological disease with autonomic manifestations usually following post-infectious encephalomyelitis as the direct result of a persistent enteroviral infection; within the nervous or gastrointestinal system.

What is C.F.S.? (Video) - Dr. Byron Hyde

Jodi Bassett on Chronic Fatigue Syndrome (Video)

Chronic Fatigue Syndrome is just as "stupid" as calling "cancer" chronic fatigue syndrome (Video) Dr. Kenny de Meirleir

"From my experience of ME/CFS there was no psychological component whatsoever, besides which exercise, if anything, was making me worse not better. I was not deconditioned or frightened to exercise. The symptoms were more consistent with a brain tumour or multiple sclerosis." - Dr. Nina Muirhead, Dermatologist (Buckinghamshire Healthcare NHS trust)

Do you really believe in ME? - Dr. Nina Muirhead (Royal College of Physicians website)

Lactic Acidosis. So that's why people with fibromyalgia feel worse for days after they exercise and they just don't exercise, they can't - Dr. Darren Schimidt

Definition of M.E. (Video) - Dr. Byron Hyde

Typical Basal Ganglia Injury in M.E. (Video) - Dr. Byron Hyde

Dr. John Chia on Graded Exercise Therapy and Diet for Myalgic Encephalomyelitis (Video)

Stomach virus may trigger M.E. - ME Association (BBC Article)

Melvin Ramsay's "Epidemic" Myalgic Encephalomyelitis (M.E.) (also known as Atypical Poliomyelitis or Polioencephalitis: Superior Polio - Medin Type) is a subtype of a "8E49 Postviral Fatigue Syndrome" within the ICD-11 and should be seen as such as its listed as such by the World Health Organisation (WHO).

World Health Organization (WHO) categorization - ME Pedia

Although the World Health Organisation (WHO) listing it as "Benign" still is an abuse of language; when it has lead to deaths around the world and within the UK and has lead to disability around the world. 

Deaths and M.E. 

Sophia Mirza ME Pedia page

Merryn Crofts ME Pedia page

Lynn Gilderdale ME Pedia Page

Emily Collingridge ME Pedia page

Severe sufferers

Naomi Whittingham ME Pedia page

Whitney Dafoe ME Pedia page

This condition should have its own distinct set of criteria; which separates the condition from other similar conditions as its own distinct disease entity. 

It also should have its own treatment; which is designed to treat the symptoms; including hormonal deficiencies as well as antivirals or immune modulating drugs or techniques designed to eradicate or minimize the destruction of the viral attack on the central nervous system and subsequent outcomes of such an attack.

Ramsay Definition of Myalgic Encephalomyelitis (M.E.)

Dr. Byron Hyde's Nightingale Definition of Myalgic Encephalomyelitis (M.E.)

Chronic Fatigue Syndrome (Post-Infectious Disease Syndrome) - A Roadmap for Testing and Treatment

HYPOTHALAMIC and TRAUMATIC BRAIN INJURY mediated HYPOPITUITARISM

Hypothalamic Disease - Wikipedia

The hypothalamus is the control center for several endocrine functions. Endocrine systems controlled by the hypothalamus are regulated by hormone (ADH) antidiuretic, corticotropin-releasing hormone, gonadotropin-releasing hormone, growth hormone-releasing hormone, oxytocin, all of which are secreted by the hypothalamus. Damage to the hypothalamus may impact any of these hormones and the related endocrine systems. Many of these hypothalamic hormones act on the pituitary gland. Hypothalamic disease therefore affects the functioning of the pituitary and the target organs controlled by the pituitary, including the adrenal glands, ovaries and testes, and the thyroid gland.

Hypothalamic Dysfunction (Video) - Dr. Charles Shepherd

Traumatic Brain Injury and Hypopituitarism (Video) - Dr. Mark Gordon (Endocrinologist)

HYPOTHYROIDISM in MYALGIC ENCEPHALOMYELITIS - LOW T3 SYNDROME or HASHIMOTOS THYROIDITIS

Hypothyroidism (Low T3 Syndrome) within CFS, Fibromyalgia & Lyme Disease (Video) - Dr. Kent Holtorf

Hashimoto's Thyroiditis is "NOT" the most common form of Hypothyroidism (Video) - Dr. Kent Holtorf

Treating Thyroid Conversion Disorder (Low T3 Syndrome) with T3 (Liothyronine) (Video) - Dr. Kent Holtorf

Hypothyroidism in Myalgic Encephalomyelitis, Fibromyalgia and Traumatic Brain Injury (Video) - Dr. Sarah Myhill

Treating "Hypothyroidism - Low T3 Syndrome" with "Hypothalamic Dysfunction" (Video) - Dr. Jacob Teitelbaum

Strange Thyroid Lab Values in Chronic Fatigue Syndrome (Video) - Dr. Kent Holtorf

Chronic Fatigue Syndrome possibly explained by lower levels of key thyroid hormones (ME Association)

ADRENAL DYSFUNCTION or TERTIARY ADRENAL INSUFFICIENCY

Stress-induced hypocortisolemia diagnosed as psychiatric disorders responsive to hydrocortisone replacement. - Suzie E. Schuder

Adrenal Dysfunction: Tertiary Adrenal Insufficiency (Video) - Dr. Jacob Teitelbaum

Dr. Jacob Teitelbaum and Hypothalamic Dysfunction and Hypoadrenalism (Video)

Low-Dose Hydrocortisone May Also Ease CFIDS Symptoms - WebMD

Low-Dose Hydrocortisone in Chronic Fatigue Syndrome: a randomised crossover trial.

GROWTH HORMONE DEFICIENCY

Changes in growth hormone, insulin, insulinlike growth factors (IGFs), and IGF-binding protein-1 in chronic fatigue syndrome.

Can Growth Hormone Treatment Help Fibromyalgia and Chronic Fatigue Syndrome? - Dr. Holtorf Kent

TESTOSTERONE DEFICIENCY

Low Testosterone levels 'linked to chronic diseases' - NHS

Can Testosterone Be Good for You? - Dr. Jacob Teitelbaum

Dr. Jacob Teitelbaum on Bioidentical Hormones for Hypothalamic Dysfunction (Video)

MYALGIC ENCEPHALOMYELITIS, POSTVIRAL FATIGUE SYNDROME & TRAUMATIC BRAIN INJURY

M.E., Postviral Fatigue Syndrome and Post-Stress Syndrome (Video) - Dr. Peter Behan

"Neurotrauma: Tissue Damage & Neuroinflammation (Encephalitis) and the loss of Neurosteroids" - Dr. Mark Gordon (Endocrinologist)

Neurosteroids and Hormone Replacement Therapy (HRT)

Low Dose Hydrocortisone (10-15 mg) can be used daily, Bioidentical Sex Hormones of Testosterone, Progesterone (10 mg for men and 20 mg for women) and Oestrogen (or injections can be used) can also be used as well as Pregnenolone (10-100 mg) and DHEA (25 mg) or 7-Keto DHEA and Growth Hormone Secretagogues as well as Thyroid drugs such as Liothyronine (25-100 mcg depending on whats optimal dose for patient) or combination of Liothyronine & Levothyroxine or combination of Liothyronine & Natural Desiccated Thyroid can be used for Euthyroid Sick Syndrome (Low T3 Syndrome); which is present in this condition because of Hypothalamic Dysfunction, Mitochondrial Dysfunction and Inflammation. Levothyroxine alone doesn't work as it just converts into Reverse T3.

"Treatment for Traumatic Brain Injury: Antioxidants and Hormone Replacement Therapy" - Dr. Mark Gordon (Endocrinologist)

The drug Clomid can also be used in this condition.

Sensitivity problems with hormone testing related to Hypothalamic Dysfunction and Hormonal Responses

Dr. Jacob Teitelbaum on Lab Blood Ranges and where they come from and the Gaslighting coming from doctors around "normal ranges"

Reference ranges for blood tests - Wikipedia

A reference range is usually defined as the set of values 95 percent of the normal population falls within (that is, 95% prediction interval). It is determined by collecting data from vast numbers of laboratory tests.

"You can't determine an individuals healthy range of functioning using this equation its preposterous" - My own thoughts. 

Its a "guessimate" based on the assumption that 95% of the population is healthy in a reality that doesn't exist. 

Its NOT science and lacking of any common sense whatsoever. 

Neuroendocrine Disorder in Chronic Fatigue Syndrome

Disturbed physiological rhythm of cortisol secretion and concentrations of T3 were significantly lower in the CFS group.

Paradigm Shift in interpretating Lab Blood Ranges by Dr. Mark Gordon (Endocrinologist)

Hormone Testing is not reliable with Hypothalamic Dysfunction by Dr. Jacob Teitelbaum

MITOCHONDRIAL DYSFUNCTION : POST-INFECTIOUS MITOCHONDRIAL ENCEPHALOPATHY & MYOPATHY

Mitochondrial Encephalopathy and Myopathy Information Page

Mitochondrial myopathies are a group of neuromuscular diseases caused by damage to the mitochondria-small, energy-producing structures that serve as the cells' "power plants." Nerve cells in the brain and muscles require a great deal of energy, and thus appear to be particularly damaged when mitochondrial dysfunction occurs.

Multivitamin 

Pure Encapsulations UltraNutrient® (Dr. Mark Gordon's Recommendation)

Amino Acids

Pure Encapsulations Cognitive Aminos (Dr. Mark Gordon's Recommendation)

Multivitamin Powder Drinks

Enzymatic Therapy's Energy Revitalization System™ (Berry) (Dr. Jacob Teitelbaum's Recommendation) - My recommendation

Life Extension's Life Extension Mix™ Powder

Mitochondria Supplements

Pyrroloquinoline Quinone (PQQ) (20 mg) and Ubiquinol (CoQ10) (100 mg) can be used to boost Mitochondrial function.

Mitochondrial Fuel

Vitamin B3 (Niacinamide) (Sow release) (1500 mg-a-day), Acetyl-L-Carnitine (500-1,000 mg-a-day), D-Ribose (15 g-a-day) and Magnesium (300 mg-a-day for men and 350 mg-a-day for women)

TYPES OF MAGNESIUM: THE BEST AND WORST (Article)

The best types of Magnesium

Magnesium Threonate, Magnesium Glycinate, Magensium Malate, Magnesium Oxide, Magnesium Orotate, Magnesium Chloride, Magnesium Sulfate, Magnesium Taurate

Organic 3's Wake Up Maggie™ - Magnesium Powder Blend (Orotate, Taurinate & Malate)

Magnesium and B12 Injections - what to do if your GP refuses to give? - Dr. Sarah Myhill

B-Complex

Doctors Best's Fully Active B-Complex or Now Food's Co-Enzyme B-Complex

or Standard Process's Cataplex-B (Whole Food B Complex) (Dr. Darren Schmidt's Recommendation)

The use of D-Ribose in chronic fatigue syndrome and fibromyalgia: a pilot study. - Dr. Jacob Teitelbaum

Vitamin C (Ascorbic Acid)

Vitamin C (Ascorbic Acid) - Dr. Sarah Myhill & Clive de Carle

Insulin Resistance

Pure Encapsulations ChromeMate® GTF 600 (Dr. Mark Gordon's Recommendation)

Anti-inflammatory Supplements

N-Acetyl Cysteine (NAC), L-Glutathione Reduced, Vitamin E - Mixed Tocopherols (d-Alpha, d-Delta, d-Beta, d-Gamma), Alpha-Lipoic-Acid, Quercetin, Resveratol, Essential Fatty Acids (igennus's Vegepa Pure EPA Omega-3 560mg), Pure Form Omega Natural and Low Dose Naltrexone (LDN) can be used to tackle neuroinflammation.

Pure Life Science's Pure Form Omega Natural (Dr. Joel Rosen's Recommendation)

Immune Dysfunction in Chronic Fatigue Syndrome (Video) - Dr. Kent Holtorf

Immune Modulating Drug with Antiviral qualities

Ampligen should be given a license and fast tracked because its an essential drug for M.E.

Ampligen ME Pedia page

Ampligen in Chronic Fatigue Syndrome

Low-Dose Naltrexone (LDN) for Inflammation and Immune Modulation

What about LDN? - Dr. Kent Holtorf

What is LDN? - LDN Research Trust

Effects of Low Dose Naltrexone in Fibromyalgia - Jarred Younger

Dr. Patrick Crowley and Fibromyalgia patient Sarah Morton on Fibromyalgia and Low Dose Naltrexone (LDN)

Anticoagulant (Blood Thinner) drug. 

Low-Dose Heparin can be used for Hypercoagulation and Natokinase, Lumbrokinase and Serropeptidase can be used to help remove the excess fibrin from the walls of the blood vessels. 

"Immune Activation of Hypercoagulation" (Video) - Dr. Kent Holtorf & Dr. Ben Weitz

Where to start? Immune Activation of Hypercoagulation (Video) - Dr. Kent Holtorf

Midodrine and Fludrocortisone can be used for Autonomic Nervous System Dysfunction.

Midodrine and Fludrocortisone for Autonomic Nervous System Dysfunction (Video) Dr. Lisa Lavine Nagy 

Pyridostigmine can be used for Chronic Constipation and Autonomic Nervous System Dysfunction. 

Dr. David Systrom on Pyridostigmine for Autonomic Nervous System Dysfunction and PoTS (Video)

The Exercise Response to Pharmacologic Cholinergic Stimulation in Preload Failure - Dr. David Systrom

DR. JOHN CHIA & MYALGIC ENCEPHALOMYELITIS (M.E.)

Dr. John Chia (Son had M.E. and recovered) - ME Pedia

Chronic fatigue syndrome is associated with chronic enterovirus infection of the stomach. - Dr. John Chia

Llewellyn King interviews Dr. John Chia about Enteroviruses being the cause of M.E. (Video)

Equilibrant (Oxymatrine) for Enteroviruses

Equilibrant for Enteroviruses - Dr. John Chia

Oxymatrine: Treatment for Myalgic Encephalomyelitis (Video) - Dr. John Chia

Immunologloblin Therapy (IVIG) for Enteroviruses

I liken it to a lake where a stream flows (Intracellular infections) (Video) - Professor Malcom Hooper

Oxygen Therapy, Ozone Therapy and Hyperbaric Oxygen Therapy can also be useful with Brain Injuries and Lactic Acidosis

Are Oxygen Starved Tissues Causing Pain and Fatigue in Fibromyalgia and Chronic Fatigue Syndrome (ME/CFS)? - Healthrising.com (Cort Johnson)

Paul Cheney, M.D.’s Oxygen Treatment for Chronic Fatigue Syndrome

Oxygen Therapies for Lactic Acidosis (Video) - Dr. Darren Schimidt

Hyperbaric oxygen therapy (HBOT) by Dr. Sarah Myhill and Craig Robinson

Peptide Therapy

Peptides likes BPC-157 can be used to heal the stomach, gut and other parts of the body as well as other Peptides can be used to ameliorate symptoms

Peptide Therapy for rejuvenation, youngevity and healing

Peptide Therapy - Dr. Kent Holtorf

Peptide Therapy with Dr. Kent Holtorf (Video)

How to use BPC-157? - Ben Greenfield

BPC-157 at UK Peptides

Probiotics for dysbiosis, allergy and serotonin

Examining clinical similarities between myalgic encephalomyelitis/chronic fatigue syndrome and D-lactic acidosis: a systematic review.

D-Lactate Free Probiotics by Custom Probiotics

GutPro® - Probiotic Powder

Mutaflor (E. Coli) Probiotics (Dr. Kenny de Meirleir recommendation)

These have some D-Lactate in them but they are useful probiotics. 

HealthAid MoodProbio™ - 30 Billion Probiotic Cultures - 8 Strains (My recommendation)

Dr. Formulated Probiotics - Once Daily Women's 50 Billion - 16 Strains (My recommendation)

Raw Probiotics™ Ultimate Care - 100 billion - 34 Strains (My recommendation)

These are useful for allergy

Lactobacillus Rhamnosus with FOS (Dr. Sarah Myhill recommendation)

Studies and treatment for ME, CFS, Fibromyalgia, Traumatic Brain Injury and Lyme Disease

Dr. Mark Gordon - T.B.I. - The 3 Year Study - (Video)

The Millennium-Warrior Angels Foundation 3 year TBI study slideshow by Dr. Mark Gordon

Millennium-TBI Project - Dr. Mark Gordon's Traumatic Brain Injury Treatment website

Effective Treatment for Chronic Fatigue Syndrome and Fibromyalgia by Dr. Jacob Teitelbaum (Video)

Effective Treatment of Chronic Fatigue Syndrome and Fibromyalgia - A Randomized, Double-Blind, Placebo-Controlled, Intent to Treat Study by Dr. Jacob Teitelbaum

Conducting the CFS orchestra - Dr. Sarah Myhill

Chronic Fatigue Syndrome and Fibromyalgia Functional Medicine Discussion Group (Video) - Dr. Kent Holtorf

Functional Medicine Meeting Dr. Weitz slideshow with Dr. Kent Holtorf

New standard for the treatment Of Chronic Fatigue Syndrome and Fibromyalgia - Dr. Kent Holtorf (Prohealth.com)

Diagnosis and Treatment of Hypothalamic-Pituitary-Adrenal (HPA) Axis Dysfunction in Patients with Chronic Fatigue Syndrome (CFS) and Fibromyalgia (FM) by Dr. Kent Holtorf

There needs to be research money given towards development of new enterovirus antiviral drugs; as well as new immune modulating drugs and a new polio vaccine for all of the polio viruses. 

Enteroviruses: Coxsackie & Echoviruses (Video) - Maureen Richards, PhD

In memory of Jodi Bassett (R.I.P.) 

Jodi Bassett ME Pedia page

"What causes M.E.?" (Video) - Jodi Bassett

Enteroviruses are capable of reactivating many different Infections including Epstein Barr, Cytomegalovirus, HHV-6, Varicella Zoster etc...

1984 Incline Village chronic fatigue syndrome outbreak - ME Pedia

Lake Tahoe interview with Erik Johnson ME/CFS Alert Ep. 105 with Deborah Waroff (Video)

Symptoms of M.E. with Epstein Barr & Cytomegalovirus (Video) - Dr. Nina Muirhead

History of going downhill fast with infections plus M.E. in family background (Video) - Dr. Nina Muirhead

Active Epstein-Barr virus infection in Postviral Fatigue Syndrome

Valacyclovir and Valganciclovir for the treatment of Chronic Epstein Barr Virus - Dr. Sarah Myhill

[Acute Disseminated Encephalomyelitis: Post-Infectious Encephalomyelitis and Post-Vaccination Encephalomyelitis]; should have its own NHS webpage

Some viral infections thought to induce ADEM include Influenza Virus, Dengue, Enterovirus, Measles, Mumps, Rubella, Varicella Zoster, Epstein Barr Virus, Cytomegalovirus, Herpes Simplex Virus, Hepatitis A, and Coxsackievirus; while the bacterial infections include Mycoplasma Pneumoniae, Borrelia Burgdorferi, Leptospira, and Beta-Hemolytic Streptococci.

Exposure to vaccines: Hepatitis B, Human Papillomavirus (HPV), Pertussis, Diphtheria, Measles, Mumps, Rubella, Pneumococcus, Varicella, Influenza, Japanese Encephalitis, and Polio vaccines have all been implicated.

The MMR vaccine has Acute Disseminated Encephalomyelitis listed in the vaccine insert as a potential risk for the immune compromised.

HHV-6 Encephalitis - NIH 

Successful Treatment of Human Herpesvirus 6 Encephalomyelitis in Immunocompetent Patient - CDC website

OTHER NEURO-IMMUNE BASED ILLNESSES

Post-Concussion Syndrome (Gulf War Syndrome) (PTSD or Post-Concussion mediated "Traumatic Brain Injury")

Post-Concussion Syndrome - Neurosymptoms.com (Neurologist Jon Stone)

Combat Trauma Syndrome (Traumatic Brain Injury) - Dr. Mark Gordon (Endocrinologist) (Video)

Traumatic Brain Injury (T.B.I.) (Video) - Dr. Kent Holtorf

Childhood Trauma and M.E. - NHS (This online article links Complex PTSD (Stress) with the later development of M.E.)

Fibromyalgia

Dr. Byron Hyde on Fibromyalgia (Video)

What is Fibromyalgia? (Video) - Dr. Byron Hyde

Primary cause of Fibromyalgia (Video) - Dr. Byron Hyde

Secondary cause of Fibromyalgia-like Illness (Video) - Dr. Byron Hyde

Persantine Myoview Stress Test on Fibromyalgia Patients (Video) - Dr. Byron Hyde

Some of the causes of Fibromyalgia (Video) - Dr. Byron Hyde

Fibromyalgia is Lactic Acidosis (Video) - Dr. Darren Schimidt

Mold Illness - Chronic Inflammatory Response Syndrome (CIRS)

ME/CFS Alert & Llewellyn King interview with Dr. Lisa Lavine Nagy about Mold and Mildew Sickness (Video)

Silicone Breast Implant Illness

‘I was on death’s doorstep’: Winnipeg woman says breast implants ruined her life - Nikki Carruthers

Organophosphate Poisoning 

Postural Orthostatic Tachycardia Syndrome (PoTS)

Ehlers Danlos Syndromes (EDS)

Toxic Encephalopathy

Post-Infectious Neuroimmune Disease (PIND) - M.E. is the result of an Enteroviral Infection; which is a subtype of the ME-ICC.

Multiple Chemical Sensitivity (MCS)

Heavy Metal Poisoning 

Post-Sepsis Syndrome

Mast Cell Activation Syndrome (MCAS)

Small-Fiber Peripheral Neuropathy (SFPN)

History of Prejudice by Nasim Marie Jafry

"One final thing: I was diagnosed with M.E. by a consultant neurologist (Peter Behan) after becoming ill with Coxsackie B4 in 1983 - pre-Canadian clinical guidelines - with what is known as Ramsay-defined M.E.. Everyone with an interest in M.E. should read Dr. Melvin Ramsay's book, The Saga of Royal Free Disease, 1986. He says - 'The prejudice harboured against those of us who hold the view that M.E. is an organically determined disease defies rational explanation'". - Nasim Marie Jafry

"You simply cannot look at M.E. without examining this history of prejudice." - Nasim Marie Jafry

Nasim Marie Jafry talking about the onset of her Myalgic Encephalomyelitis caused by an Enterovirus - Coxsackie B4 (Taken from the documentary "M.E. - The Toxic Tiredness") (Video)

The NHS has been discriminating against people with brain injuries and disability breaking the 2010 Equality Act and 2005 Disability Discrimination Act by denying people with brain injuries appropriate medical care.

Disability discrimination when accessing and using health services

I'm of the belief that Myalgic Encephalomyelitis (M.E.), Post-Infectious Disease Syndrome (Chronic Fatigue Syndrome), Postviral Fatigue Syndrome, Post-Pregnancy Fatigue Syndrome, Post-Surgery Fatigue Syndrome, Post-Infectious or Autoimmune Encephalitis, Fibromyalgia, Toxic Encephalopathy, Post-Sepsis Syndrome, Lyme Disease, Elhers Danlos Syndromes and Post-Concussion Syndrome: Traumatic Brain Injury (T.B.I.) needs to be physically added in name terms to the Equality Act of 2010 just like M.S. and H.I.V. is there in name terms. These conditions all face a similar history of discrimination against them. 

IT IS HISTORY REPEATING

History Repeats Itself (Charlie Chaplin Video Edit) - A.O.S.

The DWP has been discriminating against people with Myalgic Encephalomyelitis, Post-Infectious Disease Syndrome (Chronic Fatigue Syndrome), Postviral Fatigue Syndrome, Post-Sepsis Syndrome, Toxic Encephalopathy, Fibromyalgia, Traumatic Brain Injury and Lyme Disease by making them fight for their benefits and attempting to target this group of patients; who are severely unwell and attempting to defraud them out of their entitlements. Rejecting that they are too unwell to work. Manipulating their assessments, falsely misrepresenting their symptoms and the effect those symptoms have on them and "gaslighting" their lived experience in the interpretation of the assessments; and then making them fight them; with mandatory reconsideration's; when they have cognitive dysfunction and impairment; paralytic exhaustion and a whole host of other symptoms; sending them off to a judge and doctor to prove that they are too unwell to work and suffering from brain injuries.

Chronic Fatigue Syndrome (CFS), Myalgic Encephalomyelitis (ME) and Psychiatry (Video) - Dr. Byron Hyde

THE PACE TRIAL CONTROVERSY (Scientific Fraud)

If you spend 20 years gaslighting your patients, perhaps you should think twice before accusing *them* of trolling *you* - Professor of Psychology Brian Hughes (Response to The Pace Trial Authors)

The Pace Trial - Make It Up As You Go Along (Flawed and Fraudulent) (Video) - Professor Malcolm Hooper

The Pace Trial: "The whole study is fraudulent, The whole study is a scientific joke" (Video) - Dr. Sarah Myhill

David Tuller on The Pace Trial and Simon Wessely's "Unhelpful Illness Beliefs" and "Blaming" of patients (Video)

Rituximab treatment for Myalgic Encephalomyelitis is stupid. 

Enterovirus infections of the Central Nervous System Review

"The possible persistence and reactivation of EV in a clinical setting is of profound importance, especially with the addition of immunosuppressive drugs, such as Rituximab, given to patients suffering from B cell lymphomas. Immunosuppression, especially with drugs targeting the humoral immune response, may lead to reactivation/increased replication of persistent EV in the CNS with potentially dangerous neurological complications (Schilthuizen et al., 2010; Servais et al., 2010)."

Dr. Byron Hyde on catching Polio in School

POLIO - When I get to be a physician, I'm always going to believe my patients (Video) - Dr. Byron Hyde

It’s time for doctors to apologise to their ME patients - Dr. Charles Shepherd

How doctors are failing to spot the brain injury that could be behind 30,000 cases of 'chronic fatigue syndrome' - The Daily Mail

A cure for thyroid problems the NHS ignores - or quack doctor's poison? Mary gave her daughter hormones prescribed for crippling tiredness. Then police arrested her for child cruelty - The Daily Mail

I believe "Myalgic Encephalomyelitis (M.E.)", "Post-Infectious Disease Syndrome (Chronic Fatigue Syndrome)", "Lyme Disease" and "Post-Concussion Syndrome (Traumatic Brain Injury)" should be classified under a new category of "Neuro-Endocrine, Immunological, Nutritional and Metabolic" conditions because the current best evidence suggests that's where they should be categorized.

ENDOCRINE - Hypothalamic-Pituitary Dysfunction - Hormone Deficiencies

NEUROLOGICAL - Orthostatic Intolerance - Autonomic Nervous System Disorder (Dysautonomia) - Postural Tachycardia Syndrome (PoTS), Orthostatic Hypotension (OH) or Neurally Mediated Hypotension (NMH)

IMMUNOLOGICAL - Immune Dysfunction (Higher Th2 than Th1) - Inflammation, Allergy and Mast Cell Activation Syndrome (MCAS)

NUTRITIONAL - Mitochondrial Dysfunction (Mitochondrial Encephalopathy and Myopathy) - Nutritional Deficiencies

METABOLIC - Metabolic Syndrome & Lactic Acidosis