Jacky Lloyd has had another appeal for sodium oxybate denied by West Lancashire Clinical Commissioning Group. All despite it being the treatment recommended for her by her specialist consultant, the support of local and national press and a plea for support on ITV's "Good Morning Britain". Refusal of medication on grounds of cost is outrageous, current medication does not control Jacky's condition and her quality of life and that of her family is severely impacted. While her consultants are appealing this decision, another development in the governments treatment of Pandemrix related narcolepsy cases will see the implementation of a "Department of Health ex gratia and time limited scheme to fund the provision of Xyrem (sodium oxybate) to personal injury claimants who claim that they developed narcolepsy with cataplexy following immunisation by the NHS with Pandemrix vaccine." Details of this scheme have been made available to us after requesting them from the Department of Health (DoH) and we will make them available shortly. We were also informed that, "It is not accepted by either GlaxoSmithKline (GSK) or the DoH that Pandemrix vaccine can cause narcolepsy with cataplexy or any other condition, and the introduction of the scheme in no way alters this position". So.......Jacky and many others are denied sodium oxybate whilst others who had a NHS administered vaccine may have it made available through the back-door but not because it may have been caused by anything that anybody did to them. Narcolepsy UK support ALL people with narcolepsy, the trigger is irrelevant. What can not be allowed is a two-tier system of access to medication, denial of causation by the DoH and continued blocking of claims for compensation under the Vaccine Damage Payment Scheme by the Department of Work & Pensions (DWP), who accept causation but seem unable to share their views with DoH, another ministerial department. Given that the two Executive Agencies of the DoH, Medicines and Healthcare Products Regulatory Agency and Public Health England have both provided data supporting causation to the DWP, you would think that this would simply be a matter of putting things right for those affected by Pandemrix and also allowing people with narcolepsy like Jacky access to the same medication. Why should those with narcolepsy as a result of a defective vaccine get funding whereas others who have it for other reasons do not get such funding? What is the justification for the unequal treatment? http://www.southportvisiter.co.uk/news/skelmersdale-narcolepsy-sufferer-denied-life-8995448