Show Support for Dr. Christine Roman-Lantzy and the CVI Range
This petition made change with 2,360 supporters!
Does your child benefit from the CVI Range assessment? Does your child’s educational team depend on the CVI Range to plan and implement accommodations to provide access to the curriculum? Has your child’s vision improved as a result of Dr. Roman’s CVI Range?
Has your career been influenced by the work of Dr. Roman? Is the CVI Range essential to your professional practice? Then, we need to hear your voice.
Recently, the Association for the Education and Rehabilitation of the Blind and Visually Impaired (AERBVI), American Foundation for the Blind (AFB), and the American Printing House for the Blind (APH) came together to propose and support a resolution that limits the use of the CVI Range.
1) challenges the validity of the CVI Range;
2) aims to reduce the number of professionals who seek endorsement through the Perkins-Roman CVI Range Endorsement;
3) seeks to limit the use of the CVI Range as the assessment tool for children with Cortical Visual Impairment.
This would, in effect, limit access of children identified with Cortical Visual Impairment to assessment and program planning using the CVI Range and to Perkins-Roman CVI Range Endorsed professionals. In fact, this would limit the ability for children with CVI to receive an appropriate education mandated by law (FAPE). (Note: APH is federally funded; AFB receives federal grants.)
By placing the validity of Dr. Roman-Lantzy’s extensive body of work into question, this resolution undermines the ability of parents of children with CVI to advocate for the use of a specific educational approach geared towards their children’s unique learning needs. It is important to note that in 2010 Dr. Sandra Newcomb published her doctoral thesis: The Reliability of the CVI Range: A Functional Vision Assessment for Children with Cortical Visual Impairment in the Journal of Visual Impairment & Blindness, which is in fact, published by the American Federation for the Blind (AFB).
Parents, educators, medical professionals and therapists—we cannot let this resolution stand unchecked.
Cortical Visual Impairment (CVI) is the most common pediatric visual impairment in first world countries, affecting approximately 40% of all children with a visual impairment.
Children with Cortical Visual Impairment share the following:
C= 10 characteristics of visual functioning as noted in Dr. Roman-Lantzy’s work
V= A vision exam that does not explain a child’s functional vision
I = A history of neurological insult
The CVI Range created by Dr. Roman and validated by Dr. Sandra Newcomb, is currently the ONLY valid and reliable assessment tool that specifically addresses the characteristics associated with Cortical Visual Impairment. The CVI Range provides a baseline assessment of CVI characteristics in children that can be used to tailor accommodations and strategies for children to gain visual access to their curriculum. Repeated administrations can be used to measure progress in characteristics of CVI and improvement of functional vision. The CVI Range has been used successfully for more than a decade.
This resolution passed during AER’s conference in July.
While we support the creation of additional assessments for Cortical Visual Impairment and new research addressing the educational needs of children with CVI, currently there are no other validated, research driven assessments that exist for children with CVI. We cannot wait for the educational community to debate how to proceed. Children with CVI are in the classrooms now. They need to be taught in the manner in which they can learn.
We need more champions for our children. Please sign and share your story, as a parent, student, teacher, therapist, or healthcare provider of how Dr. Roman and her work have positively influenced you. Let AER, AFB, and APH know that we will continue to support Dr. Roman and the CVI Range, and we will not accept the limitations they have placed on the rights of children with Cortical Visual Impairment.
Thank you for sharing and for your support!
From the Start Seeing CVI Advocacy organization
Check out the Start Seeing CVI’s blog post, “Call to action: assault on children with CVI.”
Authors of the AER Resolution:
Yvette Blitzer, Dominican College, firstname.lastname@example.org
Kathryn Botsford, Portland State University, email@example.com
Sandra Lewis, Florida State University, firstname.lastname@example.org
Mark Richert, American Federation for the Blind (AFB), email@example.com
Yue-Ting Siu, San Francisco State University, firstname.lastname@example.org
Today: Gunjan is counting on you
Gunjan Rastogi-Wilson needs your help with “email@example.com: Show Support for Dr. Christine Roman-Lantzy and the CVI Range”. Join Gunjan and 2,359 supporters today.