We would like to thank you for us hitting 7500, it's taken longer then we thought and wish to hit 10,000 in the next day. The buck-passing needs to stop. If this was you and your family struggling to give our child the best start to life. Wouldn't you fight, claw and do everything you possible could do for them. Stand up and fight with us, don't let the federal government ignore your call for answer and change. Cleft children all have there own story and journey to go through and speech and communication is a big part of this. A simple love you can take months to get clearly out, the frustration of people and friends not understanding our wants and needs. 

Ethan is his own Case Study at the Royal Children's Hospital, where we have discovered through testing, scans, MRI and blood work that I have Oblique facial cleft to upper lip and jaw, Unilateral cleft lip and palate. It's the widest they have seen. Vocal cord palsy, central sleep apnoea, choanal atresia, sleep-disordered breathing, hearing deficit and Occipital Cephalocele. Through my brain scan they saw that I had a stable complex midline facial cleft with hypertelorism and flattened olfactory nerves, as well as Presumed Atretic occipital cephalocele.  The CT scan of my brain showed naos-facial abnormalities and the absence of a bony partition between the anterior cranial foosa and nasal cavity. If it wasn't for all of this we would still be on the health system not having enough speech lesson, now i am lucky have NDIS others don't and in a 2years time when Ethan only has one marker we will be told sorry denied. I will not this happen to me or my son so fight with me know and stop it happening to so many families right now, it's sickening.

Stand up and use your voice cause many children can not.