Approve the use of Trikafta in UK

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To my Government and our Minister of Health, 


People living with Cystic Fibrosis (CF) cannot access drugs that could give them their lives. Statistics show an estimated 1 in every 25 people in the UK are carriers of cystic fibrosis. ... 1 in 2 chance their child will inherit a faulty gene from one parent and be a carrier. 1 in 4 chance their child will inherit the faulty gene from both parents and have cystic fibrosis. 

Cystic fibrosis causes sticky mucus to build up in the lungs and digestive system. This causes lung infections and problems with digesting food the condition gets slowly worse over time, with the lungs and digestive system becoming increasingly damaged 


My daughter Johanna living with CF, has been an inspiration to me and all who meet her. She has never given up on her hopes and dreams and has worked hard, faced numerous health challenges and always fought each battle one by one with a smile on her face despite the uncertainty I know she feels about her future. 


Life-changing medication Trikafta is currently available but is not yet approved in the UK, despite being available in other countries such as the USA.. We need our government and the pharmaceutical company, Vertex, to help us speed up approval of the use of Trikafta in the UK.  


Trikafta, not only stabilizes CF but can improve lung capacity. If the USA can get approval in 90 days, Britain can too!  


Let's stop the waste of lives right now! Too many are being lost to this disease every day!