Dear Supporters,

Backed by your incredible supports (~83K signatures), lately we have communicated with Biogen on different fronts to request compassionate use or at least a discount on Spinraza for Kiana. Late last week we made some follow ups and now we know Biogen is aware of our request and your strong support.

While we are eagerly awaiting a response from Biogen and since we are not sure what level of discount (if any) will be provided, we have started this FB fundraiser under a non-profit organization, Child Foundation (US Tax-ID number 93-1148608). Please DONATE and SHARE if you can.

Facebook_Fundraiser Address: https://www.facebook.com/donate/231903470803153/

Please note, that the funds collected will be securely held by Child Foundation and will be directly sent by Child Foundation to the hospital that admits Kiana. And if by any means, our beloved Kiana is not able to receive the medication provided by your donations, the money raised will be generously gifted by Child Foundation to other children struggling with SMA.
THANK YOU for your continued support, and we will keep you posted on any news