Working with all of you, we created enough awareness and noise that Biogen will offer Expanded Access to Lisa Stockman Mauriello and others with fast progressing SOD1 ALS on July 15. The power of advocacy and speaking out!! Thank you for all you did to make this happen.
The #ALS community is fighting another battle for access to treatments in general. You can easily help. Click below and send the email template to your Senators and Representatives to help garner support in the House and Senate.
Help is especially needed to get Representatives and Senators onboard in IN, NM, NV, SC, NC & TX. It's great if you live in the state but even if you don't you can reach out to them. They need to realize that this is important.
It only takes about 10 minutes. Thank you.